Sarah discusses talking to her children about multiple sclerosis.
Well, my children are young; they are 3 and 4, and the younger one can’t really say multiple sclerosis, and the older one is just getting it down. They understand it as Mommy takes some pills and a shot every day and that sometimes when Mommy goes out when it’s warm, she wears weird things to keep cool, that’s their real understanding of MS. They kind of get that I get tired, but mommies are always tired in their world. All mommies are tired in their world.
But they haven’t really, I don’t think they have a full grasp of it yet, but my hope is that since they have been living with it and I have been open with it that it’s not going to be that difficult for them to incorporate into their lives when they are little bit older. I think honesty is the best policy. They help me give my shot, and when I was raising money to do the MS Walk last year, my daughter went and raided my husband’s coin jar and gave me a bunch of pennies and said, “Here, these are to help other people with MS.”
So she understands that there are a lot of people living with this and who are worse off than I am. She has been to events where she has seen people in wheelchairs and with assist dogs or walkers, and she asked me, “When are you going to get one?” And I said, “I don’t know,” and she said, “Well, can I have a ride when you do?” So trying to make this as least scary as possible for them but still being honest.
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