Alopecia Areata: Bald Girls Do Lunch

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Last week, there was a great segment on the “Today” show about a woman named Thea Chassin who has alopecia areata. About 13 years ago, she noticed hair loss in the back of her head. This progressed to total loss of all of her head hair and even her eyelashes and eyebrow hair fell out.

Alopecia areata is a form of hair loss that usually appears on the scalp in small circular patches. It is thought that alopecia areata is a type of autoimmune disease because the body’s own white cells attack the hair follicles in a similar way a virus or bacteria is fought. While it is not a genetic disease, incidence is higher in families. Approximately 4 million men and women are estimated to have alopecia areata.

After involvement with the National Alopecia Areata Foundation, Thea Chassin was inspired to organize another special support group so that no woman would feel alone managing the self-esteem challenges of this condition. She has traveled throughout the country since 2005 organizing over 30 “Bald Girls Do Lunch” events for women to come (with or without wigs) and share their feelings and experiences of hair loss.

Last month I wrote about “Stress and Hair Loss” causing telogen effluvium, which is a form of temporary hair loss. It is thought that stress may also play a role in alopecia areata but in this condition, the hair loss can be permanent or it can resolve then reoccur unpredictably. Total loss of scalp hair is called alopecia totalis. If hair loss occurs all over the body it is termed alopecia universalis.

Treatments for alopecia areata cannot cure the condition but may assist in speeding the return of hair growth. First the area is observed to see if hair does return on its own. If it doesn’t, then steroids can be applied to the hair loss area, but it can take several weeks for hair regrowth to occur and overuse of steroids can lead to thinning of the skin. Minoxidil 5% (Rogaine) and Anthralin (a psoriasis drug) have been successful in regrowing hair and PUXA (photochemotherapy) can be used in more resistant cases.

At the “Bald Girls Do Lunch” Web site, http://www.baldgirlsdolunch.org/, a calendar of scheduled lunches is posted along with other support activities. You can view the MSNBC video of Thea’s interview and hear what the women who came to the Chicago lunch had to say about the emotional difficulties they’ve struggled. Often these women have been approached by people who ask if they have had cancer or some other life-threatening disease.

Alopecia areata is not life threatening but for women, so much of our identity and others’ perception of us is connected to the fact that women are supposed to have hair and not be bald. With Thea’s help, women can look forward to a lunch where everyone at the table understands what having a bad hair day really means.

http://www.baldgirlsdolunch.org/

http://dermatology.about.com/cs/hairloss/a/alopeciaareata.htm

https://www.empowher.com/news/herarticle/2009/06/22/stress-and-hair-loss

Resources:

National Areata Foundation at http://www.alopeciaareata.com/index.html

www.pueblo.gsa.gov/cic_text/health/alopecia/areata.pdf

Michele is an R.N. freelance writer with a special interest in women’s healthcare and quality of care issues. Other articles by Michele can be read at http://www.helium.com/users/487540/show_articles.

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Michele Blacksberg RN HERWriter View Profile Send Message

We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.