doekna

AFTER 24 YEARS OF CLAIMING I HAVE BEEN GETTING PROGRESSIVELY WORSE, THEY FINALLY GAVE MY ILLNESS A NAME..WOW. NOW IF I COULD ONLY GET SOMEBODY INTERESTED IN SERIOUSLY ASSISTING ME WITH THAT THING CALLED HEALTHCARE, I MIGHT ACTUALLY THINK I WAS MAKING PROGRESS... SO, WHAT HAVE I WAITED SO LONG TO HAVE? PRETTY MUCH WHAT I THOUGHT IT WAS AT LEAST SIMILAR TO.. MYELOPROLIFERATIVE NEOPLASMS.. SAY THAT 3 TIMES REAL FAST.... I DIDNT WAIT ON THEM, AFTER SO LONG OF WONDERING AND WORRYING... GROWING MORE FEARFUL OF "THEM" AS TIME WENT ON AND THE MEDICAL NEGLECT GREW MORE AND MORE PROFOUND AND BAFFLING.... I NAMED MY ILLNESS MYSELF.. I ENDED UP NAMING IT THE "CHRONIC UNTREATED NOT MY DEPARTMENT SYNDROME"..... UNFORTUNATELY, NOT TOO MANY THINK OF IT WITH THE SAME SENSE OF HUMOR I HAVE HAD TO LEARN TO TAKE IT ALL WITH.. IT WASNT UNTIL 2011 WHEN I FINALLY FORCED AND TRICKED A DIAGNOSIS OUT OF A (NOT HOME) HOSPITAL BATCH OF THEM.. JAK 2 MUTATION, THEY CALLED IT, THEN TOLD ME TO GET EVERY THING ELSE DONE AT THE HOME HOSPITAL AND TELL THEM TO STOP SENDING THEIR PROBLEMS OUT OF TOWN.... YA,, AGAIN I HAD BEEN ESTABLISHED AS "A PROBLEM" .. AT LEAST IT FINALLY ALLOWED ME TO BECOME ELEGIBLE FOR MEDICARE AND A LITTLE BETTER MEDICAL ATTENTION AT A DIFFERENT PLACE BESIDES THE ONLY PLACE ALLOWED TO GO WITH "IOWA CARES".. THANK GOD FOR ALL THE FAVORS I HAVE RECIEVED THROUGHOUT THIS WHOLE ORDEAL.. ITS BEEN WIERD, BAFFLING, SCAREY, DOWN RIGHT JUST NOT RIGHT... OF SO MANY OF THEM TO DO SUCH EXTREME MEDICAL NEGLECT.. AND THE ONES THAT STILL COME THAT READ MEDICAL RECORDS AND WANT AS LITTLE TO DO WITH ANY OF IT AS THEY CAN POSSIBLY GET AWAY WITH.. AND STILL, I WONDER AND WORRY OF WHAT REALLY COULD BE,, AND IS.. AND GET SICKER EVERY YEAR THAT PASSES, STILL... HOW CAN REPORTS I HAVE ENDED UP GETTING AHOLD OF SAY SUCH SERIOUS STUFF, AND YET,, I AM STILL...... STILL ALIVE, STILL SICK, STILL NOT AS BAD AS WOULD BE EXPECTED FOR THE THINGS I HAVE READ, THEN RESEARCHED... I SURE DONT EVEN TRY TO PREPARE MY CHILDREN ANYMORE,.. THEY GOT TIRED OF HEARING ABOUT IT ALL LONG AGO, AND GETTING SCARED TOO MANY TIMES. AT LEAST IT PROVES I AM NOT A HYPOCHODRIACT... FINALLY. I LIKE TO WISH I WAS A POSITIVE HELP IN THE REALIZATION THAT PEOPLE WANTED ACCESS TO THEIR MEDICAL RECORDS.. I WAS AN ORIGINAL ON THAT ONE, ALSO... WHEN I REQUESTED MINE FOR THE FIRST TIME IN 2008, THEY ACTED LIKE NOONE HAD EVER DONE SUCH A THING BEFORE. AND IT COST ME NEARLY 250.00 TO GET THEM. NOW,, ITS PRETTY MUCH ALL FREE.. AND MAYBE EVEN MORE ACCURATE FOR MOST PEOPLE. I HAVE WHOLE YEARS MISSING. ESPECIALLY 2009, THE WORST YEAR OF IT ALL. I COULD GO ON AND ON ABOUT THIS STUFF, AND UNDERSTAND THINGS LIKE HEALTH CARE CRISIS AND SELECTIVE GENOCIDE FOR THE MEDICALLY EXPENSIVE ONES LIKE MYSELF TYPES OF IDEAS. SCAREY STUFF, SOME OF IT.. AT LEAST I DONT WORRY THAT I AM JUST TOO PARANOID AND IMAGINITIVE ANYMORE.. WISH STILL, THOUGH THAT I COULD FIND JUST ONE PERSON TO REVIEW THE OLD STUFF AND EXPLAIN SOME OF IT TO ME... YA RIGHT.....