An advocate from Australia will be at ASH this year, as well as CML patient advocates from Canada, Venezuela, Israel, Germany, India, Malaysia and several other countries.
The impact doesn’t stop there. Reports provided in English on the 2010 ASH Conference on an international site for CML patient advocates will be translated into languages including Hebrew, German, Russian, Estonian and Spanish so that even more people can share and benefit from the knowledge.
In the U.S., National CML Society Executive Director Greg Stephens, says the key benefit of patient participation is empowerment. “We can bring breaking news directly to those most affected, empowering them to become their own best advocate.” He adds, “It’s more important than ever for patients and caregivers to take an active role in understanding the subtleties of their disease. Medical conferences such as ASH provide deep insights into emerging therapies and treatment protocols that could take a long time to trickle down to the local treatment facility.”