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i had a complete hysterectomy at age 43. now i am 48.i often experience a dull pain below the upper portion of my pubic bone .i have a history of recurring uti.the pain is mild but has been there since past couple of months.
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I have had 35 surgeries and I am no better I never had any kids but been dealing with this since I was 14
August 4, 2015 - 8:04pmThis Comment
Hi,
July 27, 2010 - 5:00amI have suffered from endo along with other condition's, between the ages of 24-27 I ended up having 15 surgeries for it. Including a complete hysterectomy at age 27. I had everything removed and I have not been on hormones since then. My endo is still there. The comment about as long as you had your ovaries removed and are not taking HRT, can be right but please be warned that, that is not alway's true. In my case for instance my doctor did not remove any of the endo, she just very stupidly only took my organs. Which means that yes my endo is still there and yes it is still active. Nothing can or will cure your endo, unless you have a very very good surgeon that removes every piece of it from you. No offense to the other's that believe it can not flair up if you have no ovaries or HRT. I also hope I do not discourage you or frustrate you because every endo case is indeed different, but believe when I say I have lived this illness and I have seen what the doctors hide from us and the lack of knowledge regarding our illness. I do wish you best of luck and hope you are better soon.
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She is so rite this is a hard illness it is so painful i had a partial hysterectomy a little under a year ago and i just had my first flair up it was so painful I didn't know what to do .These doctors are not educated enough .i have been to so many I had 5 surgeries and nothing has work at all i am so disappointed.
June 18, 2014 - 2:53pmThis Comment
Hello,
September 16, 2010 - 10:25pmI've being gone for a while, in holiday and then I found out that my endo is back and very aggressive: it grows aprox. 1 cm/month. I am desperate, doctor said that I should have FIV, but in Romania this procedure is not free, and we have spend all our money with so many chirurgical procedures, treatment and visits to doctors in Romania and Hungary.
I really do not know what is to be done, I almost lost mu hope...there is no treatment and the cyst just grow and grow.....my live is like I am waiting to get from one operation into another, and not getting well.
I hope somebody will find a treatment for this diseases, even if for me will be too late.
I wish you all the best
Diana
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Sorry, I forgot to asign myself..I am Diana!
September 16, 2010 - 10:27pmThis Comment
Diana - Have you tried to find out if there are any support groups in your country that could help you in finding free or low cost support? It might be worth a try. Good luck! Pat
September 17, 2010 - 4:52pmThis Comment
My friend had a full hysterectomy and is taking estroven which has black cohosh in it u buy it over the counter can her endometriosis come back from taking this
January 18, 2018 - 2:32pmThis Comment
yes,definitly.
May 4, 2010 - 9:38pmThis Comment
i am not taking hormones and my ovaries have been removed.
May 4, 2010 - 3:44amThis Comment
HGK,
Without cycles of hormones from your ovaries or from HRT, it doesn't seem possible that the source of your pain could be endometriosis.
Here's an article from about.com that discusses possible causes of pelvic pain:
http://womenshealth.about.com/cs/pelvicpain/a/pelvicpainpt2.htm
I think if I were you, I'd make an appointment with my favorite doctor, and see what she or he has to say. You shouldn't be experiencing pain for a couple of months, and since you have no uterus or ovaries, clearly something else is causing it. You deserve to be pain-free! Will you consider getting checked out?
May 4, 2010 - 9:40amThis Comment