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Q: 

Can the trigeminal nerve repair itself?

By Anonymous January 21, 2011 - 8:02am
 
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I got trigeminal neuralgia when I was 8 months pregnant and although my neurolgist said it was not related to the pregnancy, I feel it may have been due to my excessive weight gain (80lbs). It`s been a year and a half since I had my son and not only have I lost that 80 lbs but I have lost an additional 18lbs on top of that and my trigeminal neuralgia is almost gone. I have cut my Carbamazepine from 600 mgs down to 100mgs and I still feel a slight shock in my face and teeth occasionally but nothing like the dibaliting pain I was having before. So what I would like to know is, was the trigeminal neuralgia due to the weight gain (possibly a blood vessle pushing on the nerve) and how long will it take for the nerve to fully repair itself or will it ever fully repair and also, if I get pregnant again ,do I run the risk of it comming back.

I really appreciate any input. Thank you.

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Anonymous

Hi there, I have had a similar situation, developed TN in my last trimester of my pregnancy, now wondering if I lose all that weight will mine also go away again

January 7, 2019 - 1:22pm
EmpowHER Guest
Anonymous

hi can you let me know how you are doing? well done for getting your medication down so low

May 29, 2011 - 10:02am
(reply to Anonymous)

Thanks for asking. Since last October, I have lost 35 pounds and the trigeminal neuralgia has diminished with the weight. I am completly off my medication now and pain free (so thankful). I did have a sinus infection a few weeks ago and I had a slight flare up with the trigeminal nerve but nothing serious.
I always thought it was the weight but now I wonder if it is sinus related. My sinusus were terrible my whole pregnancy. My Dr. said she wasn't aware of that being a cause but the sinusus do cross the trigeminal nerve.
Really I don't think I will ever figure out what caused it but I'm just beyond thankful it gone. My husband and I are tyring for another baby now and I just pray it doesn't come back.

May 30, 2011 - 7:48pm

Hi Anonymous,
Thank you for your question and for finding EmpowHER. Your condition sounds like it was super painful. Glad it's diminished with your hard work and medication. Did doctors tell you it was because of your weight gain? From what I read, it can be triggered by stress, so just the fact of being pregnant (a possible major stressor in itself) could cause your condition to come back. It can go into "remission" for an extended period, but from what I've read on this website and on the Mayo Clinic website, it may never fully go away.
You may want to ask the questions you have of your neurologist and general practitioner or gynecologist.
For more information, here is an article about the condition: Trigeminal Neuralgia article
Good luck and let us know if you need further support or have more questions.

January 21, 2011 - 9:06am
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