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By August 25, 2012 - 8:45pm
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About 10 months ago, I thought I'd had a regular UTI, I had a course of antibiotics, it helped. Then a week later it was back, my doctor didn't believe me but gave me another course of lower dose antibiotics.
I felt OK for another week or so, then the real pain started, I was rushed to the hospital crying and carrying on, I could not physically stop urinating, I thought I was going to wet myself in the car, and every few minutes the urine became more and more bloody, all the doctors said was "are you sure you don't have your period?"

I could of slapped them for thinking I was that stupid.

I was sent home with more antibiotics and within a few days I was well again.
Only to have another episode a few weeks later, more antibiotics and a referral to a Urologist.

The Urologist performed a Cystoscopy and her results were literally "Nothing showed up, all normal, it must just be in your head."

I had about a month of relief after the Cystoscopy, but as I was simply hanging clothes in my boyfriend's closet, it hit me.
I can not describe the pain I was in, it was worse than all previous times combined, I was screaming like a child, I sounded like a horse in labour. I nearly fainted from the heavy breathing (caused by stress and fear). I wish I had so I could of had some relief while unconscious.

She simply said "it's your bladder, I'll give you some more antibiotics"

I was given Macrobid 50mg to take daily for 6 months, and Trimethoprim to take for any flare-ups. Well, it's been a week and I'm still having to take the Trimethoprim (Which doesn't seem to help anyway).

I need to know if anyone else has experienced/is experiencing these same symptoms/problems I would LOVE to hear from you.

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EmpowHER Guest

Late posting,I know,but I'm essentially having the same thing,right now. I can't go for more than a few minutes without having to pee&am in excrutiating pain&in my pee,are I guess what are blood clots. I have not slept in over 24 hours due to the level of pain&painkillers don't do a damn thing. Neither does AZO. It's been going on,on&off for about 2&a half-3 months,now. I cannot sit,stand or lay down,without hurting severely. I can tolerate a decent amount of pain,but this is beyond even my threshhold. I am typing this with a grimace of pain on my face&nearly tearing up&my body is so tense with pain,it is nearly all I can think about. Can't go to the doctor,as I have no insurance&they likely would'nt be able/willing to help anyway,as far as what others are saying here&on other sites. I can barely even eat anything,because I hurt so much. This malfunctioning of my body needs to stop!

February 12, 2017 - 12:22pm
EmpowHER Guest

Are you on any other medications such as ssri classed, antidepressants? Those can give a stinging sensation. It's happening to me right now. Going odd them to have Seroquel instead.

November 3, 2016 - 5:44am
EmpowHER Guest

Yes, I have the same pain! Please tell me what it is as I have been to every doctor you can think of!! My primary did an ultrasound and cat scan and wants me to see aUrologist/ gastrointerologist because he seen a lot of inflammation.

April 16, 2016 - 4:32am
EmpowHER Guest

I know this is not what you want to hear but, it may be chronic in that you will always be maintainjng it yourself. I had this happen to me and it never really went away. Its been about 12 years for me. I just flush my system really well with water. Also, getting a hot rag and holding it on your meatus, (urethral opening) for a while will relieve pain. Make sure you clean any discharge. I have gotten along just fine after learning to deal with it.

May 17, 2015 - 8:12pm
EmpowHER Guest

plese help ihave had stinging in my urtrha for 10 weeks now and it is sending me crazy ive had 5 swabs 5 urine tests. an internal examination nd a scana nd all is clear so now im waiting to see a urologist. and im told I may be witing up to 13 weeks to see one. I have had severel courses of antibiotics.. creams and painkillers but to no avail im scared of cancer I pray it is not that. someone help im 69

August 19, 2014 - 11:17am

Hi Missie,
I have had all tests for stones and all clear.

The doctors simply do not care. They just don't believe us and send us away with more of the medication that you have just told them doesn't work. I even had a doctor say "I'll give you penicillin, even though that doesn't really work" and he laughed.

It has stressed me to the point where I have lost 5 kilograms and am constantly shaking due to the stress and fear.

I am going to the doctors again and demanding every test be done- hormone, immunity, virus check, endocrine, asking to see a pain management specialist, a psychologist, ANYTHING that might help.

I also have an acupuncture appointment today.

It's just as scary thinking I might not be able to keep an intimate relationship with my partner.

August 26, 2012 - 5:53pm
EmpowHER Guest
Anonymous (reply to Aimz45)

Please tell me what happened as I am experiencing the same story almost exactly 2 years later. I'm still in pain in my urethra after multiple doctor visits and antibiotics. I'm in misery. Please help

August 17, 2014 - 5:07pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Aimz45 here,
I'm sorry I haven't been on this site in ages but the overall result of all my ultrasounds, x-Rays, cystoscopy, blood tests, MRI, nerve block injections, showed I have two enlarged ligaments in my pelvis which are crushing my 'pudendal' nerve which serves the urethral area and labia.
I saw an osteopath who worked on stretching the ligaments out and I now do the exercises when I'm feeling a bit tense down there.
I do still get frequent UTIs which is probably due to all the muscles spasming from pain and holding urine in the urethra.

May 18, 2015 - 3:08pm
EmpowHER Guest

Hi Anonymous,

Have you thought about getting a second opinion? When I was 21 years old, I had kidney stones which were extrrememly uncomfortable but the doctors assumed I was lying about the severity of my pain until I was lossing consciousness, throwing up and litterally throwing fists around the emergency room to get peoples attention about my pain. I think it is worth a try on this once since you are in chronic pain from this. I hope this helps. Keep us posted.


August 26, 2012 - 6:03am
EmpowHER Guest
Anonymous (reply to Anonymous)

They ruled out stones yesterday on a CT scan. I also had a cystoscopy yesterday and my bladder and urethra are normal. I have inflammation so they think it's complicated cystitis (uti) that hasn't responded to antibiotics . The Urologist yesterday referred me to infectious disease. I'm on my 7th antibiotic this one was prescribed stronger and longer to try to eradicate. I have 4 days left of therapy. 6 days to see UHF infectious disease dr and get my urine analysis

August 19, 2014 - 3:08pm
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