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Help me find a Dr. in Seattle that knows about Hormonal Psychosis & dying ovary attached to nerves located in my hip

By December 2, 2008 - 3:23pm
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I'm a forty six year old and have been growing benign tumors in my breast's and ovaries since puberty. I lost an ovary due to one, my cervix was removed due to Metrorrhagia, dysmenorrhea and was pre cancerous. The surgeon found extensive omental adhesions and two marked hemorrhagic cyst. I was 41. I'd already had two previous cesarean sections, 1982,1986, failure to dialate, my womb was tipped the wrong way. With my second child I had postpartum psychosis. Afterward, about every third period, I went wacko, agressive, yelling, voted most likely to take somebody out with a shotgun, kind of whacko. Hyperactive/manic, singlemindedness bordering on obsessiveness.

It happened again recently, only with out the anger emotions. I had two small cysts on my last remaining ovary. The ovary is on my left side and when ever I suffered dysmenorrhea on the side, it presents in my hip area. I felt like I was in labour for four months, the pain progressed until I was bedridden for six weeks. It has since calmed way way down, Im just now getting back into my jeans again.

I'm afraid this will come back. Is there somebody out there that can help me while I'm lucid and pain free right now? Thank you for your time, Shara

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Absolutely Tina. I'm waiting to make an appointment with the University Hospital until I know I have some way to pay for it. I just got some word that I'll be eligable for some benifits from the state on Monday. The most expensive medication I have now is my Spiriva for my COPD, that cost's me around $170 for a months supply. I tried getting some assistance from some foundation but they said I made too much money or some other nonsense. I'm a real estate agent. I didn't sell anything in 2007. I had listings this last year, I sold a condo and the house listing went into forclosure. It had to be some kind of mistake. Maybe they were tapped out for the year. I really can tell the difference between taking my Spiriva everyday and twice a week or so like I'm doing now. I have friends that are willing to help me out with my meds but I hate asking. Thank God for Mucinex.I taught myself breathing excersises to combat my asthma. That abuterol stuff sends my heart racing. I have permently fractured ribs from coughing. I can't beleive how easy it is to break those damn things. I pretty much live like a hermit to avoid colds. I'm an eighty year old woman living in a fourty six year old shell. I rely on prayer most of all. I'll keep you guy's up to date. Thank you for everything, Shara

December 3, 2008 - 8:20pm

Shara, You are a survivor and welcome here anytime. It is somewhat reassuring to know that the Public Health Department has provided some helpful resources. Also, not sure if you're aware of the Partnership for Prescription Assistance (PPA)? It's a service from America's pharmaceutical companies that has connected four million individuals who are uninsured or lack adequate coverage to programs that provide prescription medicines for free or nearly free. That might be something to ask about if the Public Health Service hasn't provided that information for you already. You may also find this link regarding healthcare options for women useful. Will you please update us on your progress?

December 3, 2008 - 2:14pm

Well, God bless your hearts. You can't imagine how long I've been trying to find information. I spent the last few months having Group Health archive my records, I'd had them as my healthcare providers for over twenty years. It cost me over a hundred dollars, but I am now armed with my 285 pages of medical history and film. I am uninsurable because of a blood disorder but applied for medicare. I hope the U of Dub Hosp. will take that. I had looked up one of their websites but they won't help you there. They might be interested to know that I am connected to their body willing donor program. I wanted to leave it to Bastyr but the U of WA will do. My girl will need somebody that knows something about our bodies. They can start using me as a guinea pig as soon as they get their hands on me.

Ladies, I really have been feeling like I've been dying these last few years. I asked the Public Health Department to ask for my records, they recieved one fax confirming my hysterectomy. I did manage to get in some good programs thru them though. I was over due for my second check up on colon, they got me into see a dr. and I had a colonoscopy. They found five polyps this time and two were considered precancerous. They sent me to Swedish for a mamagram and I had to go through another exam and an untra sound, they had found something. It used to be just benign tumor worries until my mom was diagnosed with breast cancer and I found out my great grandmother had it too. On top of everything else, I was worried about that too. I bought my mamagrams from Group Health, sent them to Swedish and they say they don't need to see me for another year. Hell yes I'm a survivor, I'm looking forward to all the drama being over though. Thank you so much for your help. I'm going to go cry now. Thank you. Shara

December 2, 2008 - 8:08pm

Hey Shara, We submitted your question to a wonderful OB/GYN nurse named Barbara Dehn. She is a practicing Women's Health Nurse Practitioner, award winning author, and a nationally recognized health expert. She holds a BS from Boston College and earned Masters degree at the University of California, San Francisco. She came back with the following information for you.

"Dear Shara,

Wow, you've had more than your fair share of health issues. You are a survivor and should be proud of yourself. From your email, I gather that your moods are pretty sensitive to hormonal changes given the PMS and postpartum issues you've endured. I'm also hoping that you never acted on any of those enraged impulses, but many of us have certainly felt out of control.

At 46, I'll bet you're entering peri-menopause which is another hormonal roller coaster, that frankly you don't need to be on. I think you need to find a good gynecologist, who will listen and help you decide what to do next. If you're from Seattle, you're in luck, because the University of Washington has a fantastic OB/GYN department with some of the leading experts in women's health and in moods. I'd make an appointment there as soon as possible.

You're going to need another ultrasound and some suggestions about how to #1 stop the pain and #2 help with your moods. If you were my patient, we'd need at least 40 minutes to do a complete history and physical exam before we looked at various options to treat your symptoms. Please do find the time and a trained health care professional who will help you navigate through the various options. Take notes, and bring a friend along so that you can go over what they say. Good luck,

Nurse Barb"

For more information on every aspect of Women's Health, see Barb's Daily Dose at www.NurseBarb.com

Your question has also been submitted to Greater Seattle NAMI affiliate which is trying to find some good resources for you. Like Alison said, hang in there and you have our support here.

December 2, 2008 - 4:39pm

You have come to the right place! I am so sorry to hear about your past conditions, everything from the physical pain to the emotional/mental roller coaster it sounds like you've been on.

We will help you locate a doctor in Seattle...hang in there.

December 2, 2008 - 3:44pm
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