I am looking for a top notch doctor that treats vulvodynia.

Hello Anonymous,

Welcome to EmpowHER and thank you for reaching out to our community for guidance on how to find an expert who treats vulvodynia. I am sorry to hear that you have been dealing with the symptoms for 40 years without relief.

Finding an expert might begin with an internet search of vulvovaginal specialists in your area. Check with your health insurance provider for gynecologists in network Check for physicians affiliated with major hospitals or hospitals affiliated with medical schools.

I found information on the National Vulvodynia Association's website and wanted to share it with you.

"Vulvodynia, simply put, is chronic vulvar pain without an identifiable cause. The location, constancy and severity of the pain vary among sufferers. Some women experience pain in only one area of the vulva, while others experience pain in multiple areas. The most commonly reported symptom is burning, but women’s descriptions of the pain vary. "

"Since vulvodynia is not simply a gynecological condition, many experts favor a multi-disciplinary approach to its management. Treatment may involve visiting a gynecologist or vulvovaginal specialist, dermatologist, neurologist, pain management specialist, urogynecologist, and/or physical therapist. Also, because vulvodynia typically affects a woman’s sexual relationships and emotional well-being, your provider may recommend a psychologist or couples/sex therapist."

Anonymous, here is the link: https://www.nva.org/what-is-vulvodynia/treatment/

Try contacting someone at the association to locate a specialist in your area. Worth a try.

Maryann