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I have been struggling for years with health issues & drs. R not giving me anwsers

By Anonymous October 27, 2011 - 3:15pm
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I got diagnosed w/endromistriosis after 2yrs of lots of drs. & fighting at age 16 also at age 14 i had my 1st set of shingles on my face i had liproscopic surgery 2x & i have 2 girls at 16yrs old the drs. Wanted 2 do full hysterectomy i have had (r) overy taken out as well as gullblader taken out i have had numrous issues yhen in 05 i was in 2 car acc. 4mths. Apart i never heeled in fact i kept getting worse in a 10 1/2 mths period i had shingles 13x where i have lost some vision in (l) eye i went in2 hospital about yr. Ago still w/no anwsers i had 103 plus temp & growing i had emer. D&c 4 baby outside of uteris & during my 6day stay (idk how long they woulf havr had me stay but i left after no tests no anything after 6days) 2days in2 my stay 2spec. & er dr. Believed i had leukima & tolds my husband & i that i did i didnt want 2 spend anotjer day in hospital away from my kids i was in there on 1st day of school as well as my anniv. I went str&ight 2 hemotoligist & was told i infact did nit have luekima they ran every test possible the only thing that ever comes back is problems w/my liver i have begged 4 some sort of anwsers im going on 4yrs. Ni period getting ready 4 hysterectomy im now 32 my bidy is shutting down i have kidney infections all the time evrryday i have a fever in the past 3yrs my body is truly shutting down & drs. Will not helo me i met my 5000 deduc. In 3mths. & mty dr. Is just putting me on diff. Pain meda bcuz my bones HURT MY ORGANS HURT & i do not know if i should get a hysterctomy w/all these health problems im scared my husbands leaving me i sweat.all the time i have enlarged liver but drs. Arent concerened i cant control my hormones (i thinj hormonea) its mood memory & chronic pain i truly feel like im dieing i havent stop fighting 4 anwsers er & dr beleive im drug seeking when i have more pain meds then i know what 2 do with i just want to work again & have my life back. If u have anythi g that might help i have all my blood work which i get done atleast 1x wk. Bcuz i beg them 2 keep looking their r other health issues flat red dots all ovt body swollen lyphnodes neck armpits both sides of vaginia as well as lots of family history problems

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Hi anonymous,
I am sorry you are experiencing so many health problems, and are not sure what to do. It is a little difficult to follow your post, as there are no punctuation marks, and I am not sure what you were diagnosed with when you were 16 years old, had happen in 2005 versus what is going on now that it is 2011 and you are 32 years old.

Can you tell us why you have been recommended to have a hysterectomy? Is it from your endometriosis diagnosis when you were 16 years old (or is that a recent diagnosis from 2 years ago?). What treatments have you tried for this?

You say you have kidney infections "all the time, everyday", and I wonder what treatments you have been given for your chronic kidney infections?

You also said your liver is enlarged? What is your diagnosis regarding your liver? Do you have liver disease caused by alcohol use, from hereditary conditions, or something else?

What do you mean that you "can't control my hormones"? What are your current hormone levels, and what do you mean you aren't able to "control" them? Is this with medication or treatment, or are you referring to the emotional aspect of your hormones? If it is the emotional part, have you talked with a Psychologist or mental health professional who could help you feel better emotionally (and "hormonally", if that's what you mean), and some of your pain could be relieved just by having a caring person learn about your multiple symptoms and truly listen to your concerns.

Lastly, do you have one primary care doctor or a "case manager" who is helping you sort through the various testing, doctor visits and treatment options?

October 29, 2011 - 8:38pm
EmpowHER Guest
Anonymous (reply to Alison Beaver)

Hi im sorry its so confusing im in my phone & had so much 2 say. I was diagosed w/endro after 2 yrs. Of constint pain & only having 2 periods from age 14 to 16yrs of age. I have had 3 laposcooic surgeries which the drs. Found such a severe case of endro. That it was like glue sticking my organs 2gether i have had (r) ovary taken out as well as gullbladder all due 2 endro. I went 2 a GI spec. & spent 3hrs. Going over past medical history & w/all my blood work 4 past 10plus yrs. Have shown highly elevated liver enzymes as welk as almost no WPC or RPC all my test from hemotolgiat says i have no form of hepatitus or anything that can b found through blood the kidney infections they beleive r also called by the endo (glued) 2 other organs im going in 2 get full hysterectomy but the dr. Told us that its a 95% chance of bowel obstruction while trying 2 get all the endro cells idk if my shingles r related at this point im not sure what 2 do the dr is having a general surgeon stand by as welk as enteral med. Surgeon they r expecting the worse & its not 100% sure that this will help all probkems ive always.beleived why i never healed from either car accident 05 & 4mths later is bcuz i had theae prior medical problems everything just got really worse acouple yrs. Ago i just cant keep living like this the hormones i was talking about is my blood work 1wk. Hormone levels keep changing ok 2 bad so at this rime i have extreme hot flashes sweats up down moods & until surgery i can not b on hormones bcuz of the levels so off. Im EXTERMLY scared & dont know what 2 do & where the

October 29, 2011 - 9:24pm
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