I have had an extremely high Anti-CCP reading for several years all other RA test are normal to slightly evelated. I have a lot of pain and stiffness in my body. What are my changes of having RA?

Hi Anonymous

An extremely high result on this test usually indicates rheumatoid arthritis. Lab Tests Online has a nice explanation: http://www.labtestsonline.org/understanding/analytes/ccp/test.html.

Are you seeing a rheumatologist? It sounds like your physician is not familiar with how RA is diagnosed. Lab results are secondary. Rheumatoid arthritis is diagnosed with a physical exam and a careful history. Things like lab work and x-rays help confirm the diagnosis sometimes, but many people are sero-negative and have RA, meaning the labs are normal but they still have RA.

You sound like you have symptoms and a positive test. I suggest you see a rheumatologist to get a proper exam, diagnosis and treatment plan. The long you go undiagnosed and unmedicated, the more permanent joint damage you will have. RA is a serious, systemic illness. It deforms your joints but also increases your risk for cardiac disease, some lung problems, and lymphoma. It is very important to be treated by a doctor who understands RA and is up to date on diagnosis and treatment.

The Arthritis Foundation has a nice description of how RA is diagnosed: http://www.arthritistoday.org/conditions/rheumatoid-arthritis/all-about-ra/diagnosing-ra.php, and another good resources it the American College of Rheumatology: http://www.rheumatology.org/practice/clinical/patients/index.asp.

We have information on RA as well: https://www.empowher.com/condition/rheumatoid-arthritis, and I am the leader of our RA group and a patient myself. If we can assist you further, please don't hesitate to ask. Thank you for writing.

Anon - Thank you for your question, and welcome to EmpowHER. We will be back with you soon with more information to assist you.
Pat