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I was just prescribed clobetasol propionate cream for vulvar dystrophy. The doctor did not mention anything about sex.

By June 23, 2008 - 7:38pm
 
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EmpowHER Guest
Anonymous

A dermatologist tried to pin me with this diagnosis and even did a biopsy.
I asked for it and read nothing was in the dermal, just epidermal and it was.... inconclusive.
What happened was a doctor thought I had some vulvar area eczema and shotgunned me with clobetasol for about 3 months. ALL I had was an unresolved yeast infection that created a lot of vulvar skin irritation that was made worse with the use of clobetasol.
Topical steroids make fungal infections worse.

By the time I got real help I had systemic itch all over my body from the steroid making the yeast infection continue.
I found a dermalotogist who had done studies on topical steroid reactions, knew exactly what it was and had had several patients go through the same thing coming from other dermatologists.
This man got me out of it with 2 months of daily Difflican to KILL the fungal infection, then a month of probiotics to reset bowel health and then about 2 more months of Neurontin to kill the rest of the systemic itch. I also had vulvar itch this entire time, itching up and down my legs and up and down my arms. No rash except for extreme redness in the vulvar area.
I worked in allied health and knew how to read the biopsy and this was the first clue that something was wrong and the steroid was not helping one iota as I had a fungal infection that went ...nuts.... from its use.
I also paid out of pocket for the Mona Lisa treatment to reset that area from the damage of using the steroid. I did not have thin skin, it just dried me out badly.
God is our healer and I know I sought wisdom and this was what I had to do.
Perhaps some of you have been terribly misdiagnosed and my horrible experience will lead to your healing.
I will pray you all are delivered from the condition if you actually have an accurate diagnosis, too.
Hope this helps someone.

April 1, 2018 - 10:50am
EmpowHER Guest
Anonymous

That ointment is poison.
I was misdiagnosed with Lichen Sclerosus. I never had it. I had a latent yeast infection that would come up negative on regular tests, but a gyno who thought outside the box found yeast on a slide after I suffered for over a year......from something THAT SIMPLE.

I am now on 2700 mg of Neurotin daily to quell the all over body itch having a latent yeast infection misdiagnosed as Lichen and treated with this f'ng poison called Clobetasol Propropianate. My parts were so damn red from that absolute sh** for months.

Steroids feed yeast infections and the quackery I dealt with was beyond the pale with a derm who prescribed that sh** daily for 3 months straight. When I was reducing the dosage to once every 10 days, I applied a small amount on that 10th day......and within 15 minutes had itching all up and down my arms like something crawling from inside of my bones. I also had it on the backs of my legs. My groin area was unaffected concerning itch from the ointment, but I felt like I rolled in THISTLES all over my body after applying a little drop in the vulvar area. Plus it was redder than a firecracker from this POISON. My regular MD looked me over on my annual and said "your parts look fine, but I can't figure out why you are so RED". D*mn clobetasol, that's why. The derm said I had the LS shrinkage, don't know why she thought that, but I told her I have looked at every picture of this condition on the net and I don't look like that. She said it was "early". What an arrogant little lemming with her little med book to match a couple of symptoms to an RX poison........

After that episode of horrid all over body itching......I asked for the Lichen biopsy results to read for myself and it was "inconclusive" but showed surface inflammation .....which was enough for this derm to give me the hydrogen bomb Clobetasol POISON that would have kept me on her leash for God knows how long. I read my biopsy results carefully as I understood it being trained in an allied health field...and then and decided the diagnosis of LS was total BS and I have had a gyno and a better dermatologist confirm I never had the condition.

Steroids FEED yeast and I dealt with this needless crap for 20 months because of people who don't think outside the box. I can't wait to get off the Neurontin as I hate RX drugs, but Clobetasol misprescribed by a quack put me in a position to be handled like a post shingles patient with neuropathic itch all over my body from that d*mn POISON.

I thank God I found a proper derm who recognized what was going on and put me on the path to healing. I lost so much time and money over this total BS that I can't even fathom it at times.
I am post menopausal and have paid $1500 out of pocket for the Mona Lisa laser treatments to prevent this from EVER happening again and it's a GODSEND. My whole saga started with a yeast infection caused by antibiotics in January 2015.... and I searched for months on the net for someone to help me. The Mona Lisa treatments are giving me back some liquid down there so I can even think to have some kind of intimate life with my very patient husband who has sat with me through doctors appointments with a bunch of damn derm quacks who know nothing but to prescribe STEROIDS STEROIDS STEROIDS......
NEVER NEVER put steroids in that area. If you are CONFIRMED as a lichen patient with a biopsy ....that is correct.... then by all means, use the Clobetasol. However in my case, it ruined my life for close to 20 months because of a quack derm who couldn't think outside of "the box".

All of this sh** from a yeast infection that wouldn't show up on tests. Thank GOD for the gyno who put that sh** on a slide in her office and saw it within 5 minutes before sending it out officially to a lab......the results from the lab were NEGATIVE and I asked for all the strains of yeast test to get to the bottom of this sh**

FWIW, I even went to an AIDS clinic and took all those tests. Negative, but I did it as I was desperate to get to the bottom of this d*mn scenario. I threw those test results into the face of a derm assistant to the quack derm with her Clobestesol worship. He backed me down to another steroid at the time and it didn't do sh**, probably prolonged the issue, but whatever......

Pull $1500 out of your pocket for the Mona Lisa treatment and get off the leash of these d*mn terms who look at something and think the solution are these f'ing hydrogen bomb steroid ointments.

I don't even care that the Mona Lisa laser treatments are not covered by insurance. I wasted between $2K-3K and over a year of my time with these steroid derm quacks, so what's another $1500 to get my life back? Between that treatment, the Neurontin...and oh YES 2 solid MONTHS of Difflucan to kill the d*mn yeast infection I had for over a year...once and for all, I finally have MY LIFE BACK.

You have to be your own patient advocate. Don't think for a minute because someone has a certificate on their wall that they have the last word...

November 30, 2016 - 1:10am
EmpowHER Guest
Anonymous (reply to Anonymous)

I hadn't realized that I had replied to my own post.
Well, it's a year later and I am fine.

Do not take the word of a doctor as the last word is all I can say.

I also have had to repeat the Mona Lisa treatment as getting a fungal infection resolved by a smart dermatologist was all that was needed.

I have to wonder how many women are walking around in needless misery because of the way the US health care system has seemingly gone to pot.

April 1, 2018 - 11:06am
EmpowHER Guest
Anonymous

Any home remedies for the itching for this I'm out of my cream haven't needed it in a long time but I'm going crazy tonight the itching is intense...

February 24, 2015 - 10:08pm
EmpowHER Guest
Anonymous

I would never think about any form of sex until I took a good shower and made sure all the Clobetasol was gone from my body, totally gone!!!

August 10, 2012 - 9:28am
EmpowHER Guest
Anonymous

I just found out I have Lichen Sclerosis, the only symptoms i have is itching, my question is if i start using the clobetasol steriod will it make my skin thinner and get worse and cause me not to be able to have intercourse with my husband? Are there any side effects to this cream that i should be aware of?

November 30, 2011 - 6:56pm

You didn't say where in New Jersey you are. May I suggest that you Google physician referral in New Jersey, or ask your OB-GYN for a referral.

See this for a definition of vaginal lichen planus, University of Iowa

October 8, 2008 - 6:59pm
EmpowHER Guest
Anonymous

It is confirmed through a biopsy that i have vulvar lichen planus. I am at the end of my rope. i would like to go to a dr who knows more on the disease. I live in NJ can you suggest any physcians?

October 8, 2008 - 5:27pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I was at the end of my rope too, read an article online about Dr. Andrew Goldstein in DC and contacted his office out of sheer desperation. He doesn't take insureance and I had to travel there, but I bit the bullet and went to see him. He has really helped me! I couldn't have intercourse without really serious tearing and am now happily sexually active. Good luck!

April 30, 2012 - 1:33pm
EmpowHER Guest
Anonymous (reply to Anonymous)

What did the doctor say?

December 19, 2012 - 2:18am
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