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idiopathic peripheral neuropathy

By Anonymous December 15, 2009 - 7:25am
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I had 3 times a classic lumbar(1st-L4-L5-S1,2nd-L5-S1,3rd-L5-S1 after 31 day again) spine surgery and after 2-nd received hospital infection and sepsis, which is not identify in the hospital, i was sent home,despite the unbearable pain. the doctors said that the pain is normally caused by 2nd spinal surgery L5-S1 and during stay in hospital they gave me pain pills and injections, and then release from the hospital . After arriving home when the medicines and injections yielded "Could not Breathe of pain"(it was infection).then again after thirty days 3rd URGENT operated the way because they saw the picture of magnetic resonance MRI, which I made (picture shown inflammation or infection of the spine Hospital). After 3rd surgery I passed the hospital treatment of infection intravenous (bombs of drugs) and subsequently with antibiotics according to the instructions the doctor, wearing corset for fixation of the spine 6 months, passed a variety of rehabilitation centers .i swimm and exercise following instructions of physiatrists and physical therapists, however, the situation is not improving spine, but going up and begins to feel the following sensations: annealing in the legs and hands, burning sensation, tingling, spasms and muscle weakness, poor sensation in the skin, literally "shoot" all the joints of the foot to the shoulder, balance disturbances, muscle weakness and muscle around the neck skeleton, bones crunch appears to PES CAVUS feet (concave feet), difficulty walking, and we fully functioning, I have constant pain ... again go to the neurological emergency treatment in hospital. I was diagnosed senzomotorna polyneuropathy (POLINEUROPATIA SENSOMOTORIA) and made a very extensive neurological processing of blood index, fluid treatment, folic acid, vitamin B12, a genetic search to the hereditary neuropathy Charcot Marie TOOTH-CMT1A/HNPP , beta2-mikroglobulin, ACE, various cancer tests, fibrinogen,electrophoresis and immunoelectrophoresis of proteins , serology in syphilis, anti-HCV, various immunological tests, serology neurotrophic viruses in the fluid, serology at the neurotrophic viruses in serum, burgdofers in fluid and serum, molecular genetic analysis on FRIEDREREICH ataxia, profile izoforms transferina, molecular genetic analysis in ataxia spinocelebral .... All tests are NEGATIVE! At the end of the neural processing of polyneuropathy in discharge summary described as idiopathic, but in conversation with doctor which led me to get a response is the conclusion of the whole team who carried out the processing that is caused by surgerys,hospital infection and sepsis? Of course it is not written anywhere! approaches and the latest findings EMNG's so if someone knows something about how I begged the answer also.

EMNG says - chronic neural lesions in the foot muscles and the ankle, more to the right, lesions in the front thigh muscles, lesions in hand. Enforcement n. peroneus is on border, distal latency n. extended median, h reflex in m. soleus of reduced voltage, more to the right. EMNG shows distal motor axon illness to overlap with chronic radikulopathy s1, l5 more right.
Please help - as you can read a this is my big fight, my legs and muscles are week, I do not know how solve this health problem.. i am trying to bring myself in a functional state that can do a job and want to somehow exit the hell of life so much and start to live normally and work!

1.-generally any useful information on polyneuropathy, whether it can be cured (if not, how to treat)
2.-aid type of therapy for the polyneuropathy, reducing pain, etc.
3.-physical methods of rehabilitation and quality rehabilitation centers for this type of problem in the country and abroad, if someone has the knowledge (where I live is poor physical rehabilitation - absolute zero, all the patients inserted in the same cage, doing the same exercises regardless of the problem DISASTER-and shame the same time)
4.-What is the distal motor axons illness, if someone could comment on the professional
5.-any possible diagnosis should still make for better troubleshooting
6.-what kind of drug therapy use
7.-suggestions for therapeutic coolant polineuropathy or electricity, etc., which helps reduce pain
8.-an alternative that can help in this case (teas, diet, fat, devices for pain .... all of which helps)
Also i' am afraid of genetic diseases--is this CMT disease with this test excluded because i am planning baby (i' am male 37 yrs),none in my family has CMT.

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I am wondering how you are doing? Your question was so specific and complex, that I am still in search for an expert to help. Do you have any new information?

Take care,

February 21, 2010 - 8:35am

Thank you for your question, and we will spend some time conducting research to find some answers to your questions.

It sounds like you are being well taken care of, with your team of medical experts, and that you are advocating for your own health. Hang in there, and we will respond again soon.

December 15, 2009 - 3:16pm
EmpowHER Guest
Anonymous (reply to Alison Beaver)

alison thanks!
---i am fighting for myself for my life,funcionalitty and so on....like in song "i will survive"
best regards !!!

December 17, 2009 - 3:12pm
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