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Just found out I have breast cancer. Please help about surgery, implants, decisions.

By May 18, 2009 - 6:13am
 
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I had a Stereotactic Biopsy one week ago, and two days ago was told I should have a Bi-lat Mastectomy due to my history.

With every passing year, the mammogram shows my breasts have become a little more threatening, and they have finally crossed the line and now I have breast cancer. (That was not nearly as shocking to me as was the Bi-Lat Mastectomy)

I haven't had much time for all this to sink in. I trust my surgeon, he's handled other procedures that followed my mammograms, a lumpectomy, a few needle biopsies, and he is highly revered in my area. He wants a plastic surgeon on the team, and says we need to act soon, as the cancer has not yet spread.

I would like to start reconstruction at the time of surgery if I am a good candidate, so there's much to learn. The options are overwhelming at this point, but after speaking to the plastic surgeon I hope to have a better grip on it. I am reading everything I can to become better informed, but in the end it will be the plastic surgeon that will be the deciding factor, perhaps he can help me find the best option for my circumstance.

With my limited knowledge I am hesitant to go with the implants, as there seem to be some adverse reactions to them, I'm concerned with their longevity too. I don't want to do this twice. And I don't want to have freekishly perky breasts if I make it to 80, it's just not me.

I am also hesitant to displace any muscle tissue due to my lifestyle. I own and live-aboard a 40-foot sailboat and I need what precious little muscle I have. I fear that losing it in my shoulder, back or abdomen will be problematic in heavy weather when I need every ounce of strength I can muster. I have hopes of sailing to faraway lands one day, remote places. And plastic surgeons weren't on my list of places to visit, so my hope is to do this remodeling project, and be done with it.

I suppose that may be unrealistic. As I said, I have much to learn and am new on this journey.

Can other breast cancer patients offer any experiences or advice that might help me here? Thank you, Deb

Add a Comment14 Comments

Thank you for all your support, and for all the links. It never occurred to me to mention my age, I'll be 52 in August. It seems unfair that I get a diagnosis one week and news that I should have a bi-lat mas. the next. But given the markers-I started my 1st period just before I turned 12, I've had precancerous breast disease since 2000, very dense, w/several cysts, it's sort of making sense...sort of.
I know I write like I'm doing great, but that's my game-face. I'm a great pretender to the world when I can get away with it. This is my biggest challenge and it has zapped me of my energy. I spent all day in bed on Saturday hiding from the world and all those who tried to contact me. I couldn't eat for two days, I forced myself to get a little down twice during that period, and tried to drink water when I could. I'm only communicating via email at this point because that's all I have the courage for right now. It hurts to hear the pain in their voices. When I get a little stronger I'll be able to face them again.

I have ordered the Breast Reconstruction Guidebook, but it won't get her till after my 1st appointment with the Plastic Surgeon. That appointment will be this coming Wednesday, then I meet again with my general surgeon on Tuesday morning to get more details and perhaps a To-Do List if I'm lucky. I do like my surgeon, he has handled a previous breast surgery and my needle biopsies, and has a good bed-side manner, but as another valuable contact who is much further along in her breast cancer journey put it, "You're in the 'big-time' now and you need to consider a specialist." It's all happening so fast I'm not sure I have time to seek out a second opinion at this point but I will try.
Thank you again, for everything.

May 18, 2009 - 6:59pm
(reply to Deb)

One of my running trainees is a double reconstruction patient and said that, even though it took a while to heal and feel "normal," she is so pleased with the results.

Here's wishing you all the best and please do keep us updated on your progress.

May 18, 2009 - 7:49pm
EmpowHER Guest
Anonymous

I'm sorry about your bad news. Best of luck with whatever treatment you decide on.

May 18, 2009 - 9:45am

Deb, I have to say that for someone who just received a tough diagnosis, you are doing great!!

You are doing exactly what you should be doing right now: Seeking information, asking questions, speaking to your doctors, and working through the decision options in the best way for you.

The best news of all is that your cancer hasn't spread. After the surgery, you won't have to deal with chemotherapy or radiation, and you'll be able to get back to your life more quickly after recovery. I'm so glad to hear that this is the case.

I wanted to point you toward some EmpowHer entries where women wrote about their own bilateral mastectomies and/or reconstruction:

https://www.empowher.com/news/herarticle/2009/04/16/recovering-my-prophylactic-bilateral-mastectomy

https://www.empowher.com/community/ask/i-am-37-and-underwent-bilateral-mastectomy-diep-flap-immediate-reconstruction-reconstr

https://www.empowher.com/news/2009/04/29/more-women-breast-cancer-are-choosing-double-mastectomies

In terms of whether or not you choose reconstruction, it is an entirely personal decision. You didn't mention how old you are (unless I missed it), but we totally plan to have you around until you're 80 or beyond! And if you're still sailing your boat then, I don't think it would be at all out of line for your entire body to be fit and "perky," not just your breasts, LOL. But seriously, in addition to body image and strength, you may also want to consider the fact that we deal with our bodies every day when we get dressed, or go shopping. I have a friend who had a mastectomy and no reconstruction who found it very difficult to find clothing in her proper size (which was probably a 12) where she didn't look "empty" up top unless she wore a prosthesis. After about 20 years she ended up having a reconstruction and is very happy with it, primarily for this reason.

You might like this worksheet that is based on helping you with a decision about whether to have reconstruction. It outlines key points (including different kinds of reconstruction surgeries, for instance). It also lists some references and books at the end:

http://health.yahoo.com/other-other/should-i-have-breast-reconstruction-after-a-mastectomy/healthwise--tb1934.html

Here is the American Cancer Society's page on breast reconstruction, including a list of questions to ask your plastic surgeon:

http://www.cancer.org/docroot/CRI/content/CRI_2_6X_Breast_Reconstruction_After_Mastectomy_5.asp

Here is the breast reconstruction surgery site from the American Society of Plastic Surgeons. There are before-and-after pictures, patient stories and surgery details here:

http://www.plasticsurgery.org/Patients_and_Consumers/Procedures/Reconstructive_Procedures/Breast_Reconstruction.html

And this might be an awesome resource for you: There is a book called "The Breast Reconstruction Guidebook" on Amazon.com that has been given 5 stars by its 25 customer reviewers. Here is what it says about the book:

"The best-selling guide to mastectomy and reconstruction has been rewritten and updated. This new 2nd edition of The Breast Reconstruction Guidebook retains all the comprehensive information, descriptions ad explanation of the original issue, along with new information about the lattest implant and flap reconstruction procedures, how to find a surgeon who specializes in these newer techniques and much more. No woman wants to lose her breasts. But having a mastectomy doesn't have to mean living without them. How do you find answers about mastectomy and reconstruction when you're still overwhelmed by your diagnosis and treatment? How real will your new breasts look and feel? What if you don't want implants? How painful is the process? Will your insurance cover all the costs? What is recovery like? The Breast Reconstruction Guidebook has the answers. Easy-to-read text explains mastectomy and demystifies reconstructive options. You'll understand the benefits and risks of different procedures, so you can determine which technique, if any, is right for you. You won't be alone; each chapter includes insights from women who have been through it all."

Here's a link:

http://www.amazon.com/Breast-Reconstruction-Guidebook-Second/dp/0966979974

Please let us know if we can research anything specifically for you. And please come back and update us on how you're doing, and on what you decided. I know that many readers will be interested, and you'll help them in their journey along the path as well.

May 18, 2009 - 9:14am
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