Improved
6119 HealthChanged
3788 LivesSaved
3575 Lives1 lives impacted in the last 24 hrs Learn More
just looking for any kind of help regarding this disease. Have no idea anything about it and it's very scary
All user-generated information on this site is the opinion of its author only and is not a substitute for medical advice or treatment for any medical conditions. Members and guests are responsible for their own posts and the potential consequences of those posts detailed in our Terms of Service.
Add a Comment2 Comments
I can understand your fears. I will offer you some links to information that may be helpful to you.
The EmpowHER Idiopathic Pulmonary Fibrosis home page
https://www.empowher.com/condition/idiopathic-pulmonary-fibrosis
offers information. There doesn't appear to be a Idiopathic Pulmonary Fibrosis Group, but you may want to start one.
The Pulmonary Fibrosis Foundation website
http://www.pulmonaryfibrosis.org/ipf
offers an explanation of what idiopathic pulmonary fibrosis is, the prevalence, symptoms and quality of life with IPF articles.
I hope that your fears will be somewhat lessened once you learn more about this condition.
Maryann
February 13, 2012 - 5:38pmThis Comment
Maryann
February 13, 2012 - 6:24pmThank you so much for taking the time to reply to my questions. I will check out the info from above. I'm still in the doctor/testing stage - waiting for appt. with PF guru in Hershey, Pa. so any ideas, suggestions, help is very much appreciated. Starting a support group myself will probably be down the road after I get myself better acquainted with this disease and the progresses on it
Joanne
This Comment