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Just had my first abnormal pap/tested positive for high risk HPV- advice?

By September 6, 2010 - 9:21pm
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I am 25. I have had normal paps every year since I first started having sex at age 17. Just last week my pap came back abnormal with high risk hpv. My doctor told me to schedule a colposcope/biopsy asap.
Does this mean that my results were really bad? Does she know what type of HPV I have ? What's the likelihood that it's severe or already cancer ? I also have no health insurance. If I apply for health insurance will the insurance companies deny me for a pre existing condition?

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EmpowHER Guest

Hello...I just had a cone byopsy and they did find one VERY tiny spot of cancer. She said it was smaller than a dot at the end of a period. She said "the good news is we got it all out" and they also got all the abnormal cells out too....She said if one had to have cancer this would be the one to have because it's the lowest of the low of dangerous cancers...but she still recomends that I have a hystarectomy....<---excuse spelling lol....I am also hpv positive....
Should I get a hystorectomy? Is it possible that I could have other dots of cancer in places they did not biopsy? She said she really did not think there was anymore cancer anywhere but still recomends I get a hystorectomy....Uggg....i'm confused...she also said the type I had was the type of cancer that starts in one spot and then grows from there and mine was obviously caught very early...it was so so tiny....
I am 48 and I am still having periods but if I get a hystorectomy it will throw me right into menopause...and I worry about that...I am very against hormone therapy....
Please let me know what you think :)

Thank you :)

June 21, 2014 - 10:39am
EmpowHER Guest

Hi Anonymous,
Colposcopy are used to monitor possible cancer cells as although you are diagnosed with high risk HPV, this doesn't mean you will get cancer.

For your particular situation, you need to ask your doctor since they have been obviously monitoring this for some time now. I am sorry I could not offer you a better answer. The best thing would be to write all the questions you have down before you go.

Good luck,

April 24, 2011 - 8:11am
(reply to Anonymous)

Hi Anonymous,
In addition to Missie's great information, I wanted to tell you that from what I have read, it is not uncommon for pregnancy to reactivate HPV and cause lesions to form.
It is most important to keep going to the doctor, and if you need to, call the doctor's office and ask the questions about treatment for your particular case. It is possible you have a form of dysplasia that doesn't require more than what the doctor is doing. Some doctors take a "wait and see" approach in milder forms of dysplasia. But ask the questions to ensure you are getting the answers you need for your own peace of mind.

April 24, 2011 - 5:57pm
EmpowHER Guest

Hello I have had abnormal PAPs since I was 17 years old and never payed much attention to it till last year after I had my Daughter, I went in for my check up after the baby and they had me go have a colposcopy and they told me to go back in a year and have another HPV test done ( i guess since I was a high risk) I tested positive to HPV and high risk and have to go for another colposcopy again. Im concerned as to why I seem to always have abnormal PAPs and if I will always have to have yearly colposcopy's....Should I be questioning any my Drs haven't recommended something more aggressive like removing abnormal cells.... I'm lost on whats going on with my body and what i should be expecting from my Dr's.

April 23, 2011 - 3:47pm
EmpowHER Guest

Hi Anonymous,
If you were diagnosed with HPV you have a pre-existing condition. As for a possibility of denying you coverage, that is up to the insurance company and therefore, a clear answer to that question is unknown. You must apply to receive the answer. I am sorry I cannot help you further with this question but unfortunately, insurance companies have their own rules about pre-existing conditions.

Can you please keep us updated on the results?


April 7, 2011 - 7:14am
EmpowHER Guest

I was diagnosed with high risk HPV for a year now and is going back to my Ob/Gyn every six months to monitor my status. The result of my recent visit came back with a normal pap smear and am still HPV positive. I want to switch my individual insurance plan to lower my monthly premium (as I am pretty healthy otherwise). Does having HPV means I have a pre existing condition? And if so, will I be denied coverage because of this medical condition?

April 6, 2011 - 6:47pm
EmpowHER Guest

OMG..thank u all for your posts. I was just informed I had high risk hpv and had a biopsy today. I cried when the Dr. Said I had hpv, all I was thinking is that I don't take care of myself enough. But when I read that almost all women get it, I was extremely relieved...thx

March 30, 2011 - 6:59pm

Hi everyone,
I recently had a colposcopy and cone biopsy where they removed high grade dysplasia cells. Do any of you know if this means high risk of cancer in the future? I feel like I will be terrified for all my future paps!!!! The most complexing is how quickly I went from low grade to high grade! Totally freaking out!!!
Char G.

January 8, 2011 - 7:57pm
(reply to Char G.)

I am sorry you are freaking out, but you are asking great questions and educating yourself...that is the best you can do right now while you wait of further test results.

High- grade means "precancerous". This does not mean you have cancer, but it is important to know that there is a chance, and to educate yourself on what it means, and what treatment options are available. You are having excellent tests done, and if you are catching abnormal precancerous cells, this is actually very good news that these can be treated, in hopes to prevent them from becoming cancerous. Precancerous does not necessarily mean that the cells will inevitably become cancerous, but there is a greater chance.

this is a helpful place for more information: http://www.cancer.gov/cancertopics/factsheet/Detection/Pap-test

January 9, 2011 - 9:37pm
(reply to Alison Beaver)

Thanks for your response Alison. I really am trying to educate myself but admit that most of the time I am afraid of the answers!!! I've decided to book an appt with the oncologist to discuss this further. When I received the results last October that I didn't have cancer and that they removed the precancerous cells, I was so overwhelmed that when they asked if I had any questions, I said no (the only question I had was answered....no cancer). I am scheduled for a repeat pap in April but feel that I cannot wait that long for answers to these questions. Thanks again for replying to my question.
Char G.

January 10, 2011 - 7:54pm
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