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Retinitis Pigmentosa sine pigmento

By Anonymous March 22, 2011 - 1:28am
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Hi. My sons, 2 1/2 (severely visually impaired) and 11 months (only has reduced vision) both had ERG's and everything is pointing to Retinitis Pigmentosa without pigmentation (sine pigmento). Is this also progressive as with normal RP? How long will it take for my younger son to be severly affected? My husband and I have no known history of RP in our families.

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Hi Anonymous,
Thank you for your question and for finding EmpowHER. Retinitis Pigmentosa typically is considered a hereditary condition. It is unclear how quickly your younger son could be severely affected. You may want to ask these questions of your eye professional. They may be able to provide some suggestions for dealing with RP and possible treatment. There currently is no known cure for the condition. I did not find any information you are looking for specific to RP sine pigmento.
For more information, please check out this link: RP: Hereditary Vision Loss, and RP: Progressive Vision Loss.
There also are several clinical trials in progress to investigate new treatments for retinitis pigmentosa, including the omega-3 fatty acid, DHA. Ask your doctor for more information about that and to find out if the treatment is appropriate for children.
Good luck and let us know how else we may be able to help.

March 22, 2011 - 7:42am
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