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What is the life span of a person with Primary Progressive Aphasia

By July 19, 2010 - 11:34am
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My mother was diagnosed with PPA about 4 years ago and now has much difficulty in speech. Also will sometimes retreve something else that she was asked to get and is incapeable to do almost everything, but remembers past and seems to understand what you are saying. Is it going to get worse to the point where she wont know us like Alzheimers and eventuly kill her. Thankyou Tim

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EmpowHER Guest

My mother was diagnosed with PPA in 2014 at age 61 and declined quickly. Her speech, writing, reading, motor functioning has been very affected. She was diagnosed when I was 23 years old. My father was also sick and taking care of my mother. Due to their illnesses, they both lost their businesses, their home, and filed for bankruptcy. After my father died I did not have the time due to my enrollment in graduate school, nor did I have the energy or the money to become her full time caretaker so she is now in a home for those with dementia. Luckily I was able to find a place nearby for a few hundred dollars over the amount she receives in SSI. She is well taken care of but hates living amongst "old" people. She was in extreme denial when the onset of her disease came around 2012/2013 and took much convincing to get her to see a doctor. She has always thought of herself as young and independent so facing this disease has been a continual struggle for her. Losing my father and my mother has been difficult and having to take on the role of caregiver has been heartbreaking.

January 12, 2018 - 10:50pm
EmpowHER Guest

Wow, I had NEVER heard of this diagnosis before I started looking up MY symptoms. Hmm....I'm 53 and female (from birth), what are the odds this is what I have? I'm scheduled to see a psychologist who tests people to discover what part of the brain is affected before I can see a neurologist. I thought I might have early onset Alzheimer disease. But my personal diagnosis matches with PPA. I can still understand people when they talk, but they can't always follow me. I have a lot of hesitation when I try to find the right words when talking. Common words such as chair, table, etc. Even writing this is a chore. Thank God for spellcheck! I cannot follow spoken directions as I forget almost immediately what was said. My spelling is getting poorer too -- and everyone used to count on me to be their dictionary. I used to be a language arts teacher -- and the difference from then to now is nearly white to a very dark shade of grey. I haven't been medically diagnosed yet, but my PCP is concerned and sending me to have some tests done before he sends me to a neurologist. This sound familiar to anyone else?

April 19, 2017 - 10:59pm
EmpowHER Guest
Anonymous (reply to Anonymous)

You are wise to get checked out early. There are some medications which may really help. When my mom was concerned enough to get tested, she went to neurologists at our local memory center. I wish you well in this journey to get answers.

April 20, 2017 - 8:40pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Thank you! I just completed the neurological tests and the Psych seemed concerned about my test results. I have no idea why she seemed concerned. Was it because I did so well on the tests or is it because I did so poorly? i'll feel like an idiot if the tests come back and there is nothing to prove from them except that I am just a hypochondriac. I won't know the results for at least 2 more weeks.

June 10, 2017 - 10:54pm
EmpowHER Guest

My mother was diagnosed with PPA 3 years ago. She no longer drives and she has a very hard time trying to convey her thoughts. Naming objects is a daily struggle. She also is very compulsive when it comes to cleaning and eating. It's extremely hard to see this happen and it breaks mt heart. I was wondering if cannabis oil might help with being more "lucid" and improve her speech???

November 5, 2016 - 9:22pm
EmpowHER Guest

My husband was diagnosed 11 years ago, when he was 53 years old. Doctors really do not know about the length of the disease. He really lost his speech very quickly, But 4 years ago the worse problems arraised: agressive behavior, with medication the problem passed. You have to be strong and stand this stage, it will pass. Since 2 years ago he has become totally incapable of doing anything by himself, as eating or drinking, also he started to use diapers. Now he is loosing totally his capability of walking. What I have been told is that once the patient is totally postrated you have one year. He still lives at home and recognizes me and understand some basic things, they understand more things that we imagine.
Hope this helps you, try to enjoy your love one the most that you can.
Good luck

May 16, 2016 - 10:17pm
EmpowHER Guest

My uncle was diagnosed with PPA a few years ago. He has lost his ability to speak. He is my favorite uncle; my mother's younger brother. He is 82 now and his condition makes me so sad.

March 26, 2016 - 6:35pm
EmpowHER Guest

A 53 year old male friend was just diagnosed with PPA in June and passes away barely 6 months later.
It was such a shock, especially reading everything I did about how people can live with this for many years.
How often are cases this severe?

December 21, 2015 - 2:48pm
EmpowHER Guest

My father is 72 and has declined immensely in the last two years from PPA. For years the doctors thought he had Parkinsons disease and have been treating him for that. But we have come to find that he In fact has PPA. When he talks he whispers but he thinks he is speaking normally. The biggest problem is stability. He can barely walk and navigate. He falls multiple times a day. My mother who is 62 is still working full time and taking care of my father is also a full time job. I am the oldest of their children and i have two younger sisters. We no longer live at home and we all have families of our own. So we all take turns caring for him because he can no longer be left alone. It is true he acts like a child and it is so sad watching your father deteriorate right in front of your eyes. The reason I am writing this is if there are any programs we as a family could go to or look up on the Internet to help him with this horrible disease. It is new to us and we want to make the last years of his life the best we can. Thank you for reading and taking the time to answer me if anyone can. Thank you.

July 14, 2015 - 2:57pm
(reply to Anonymous)

My mum has just been diagnosed and I am so lost

October 27, 2016 - 4:44pm
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