I have Idiopathic Gastroparesis. After Botox injections and a G tube they decided to do a Roux-en-y. During the surgery, the surgeon felt my stomach wasn't BIG enough to go that route and instead placed a j tube in Feb. Since then it has been H E L L!!!!!! Not to metion the pain, I cannot tolerate any formula. I have lost over 20 lbs in a month and they won't prescribe narcotics because I have motility issues. Tramodol does not help at all!!!! I am allergic to Ibuprofen and Naproxen. Now I won't, refuse to use the tube at all even for meds b/c everytime I use it my stomach swells and the pain it causes is EXCRUCIATING!!!!! I'm at my wits end, and though I'm not suicidal(against my beliefs), I WISH I WAS DEAD!!!! I'd rather be dead than live like this. Please, please, please help me. My doctors said thre is nothing more they can do. I don't buy that. You tell terminally ill patients that, I'm not terminally ill. See I have county provided insurance and I think that's why they've given up on me, because they probably don't get paid very well for lil' 'ol me.
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