Growing up was as a child was a challenge for me, at age 13 my mother notice that I was walking on the side of my feet so she took me to the doctor, because she though I caught polio or some thing but the doctor run multiple test but could not come up with a diagnosis as to what was my problem, we went to a bone specialist and he couldn't find any thing wrong with me either. At age 15 I started moving very slow.
Then at age 16 my father took me to his doctor and he refer me to Neurologist and was admitted to the hospital the same day I was there for 3 weeks the doctors run a lot of test but still nothing so he gave me some tablets when I was in the hospital that seams to be helping. I found out that the medication I got was for people with Parkinson Disease (Artain, and Cogentine) but I stated going to another doctor and he did a test for Parkinson Disease and the test came back negative but the funny thing was I have all the symptom moving slow, having difficulty walking, depression, and my left hand shaking stiffness in my legs my jaw shakes some times mostly in the morning.
lately I am now experiencing shucking on the spot I am afraid of going across the road by my self tried it once and I stuck in the middle of the road. It is hard knowing that you can't go any where by your self.
(to be continued)
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Thank you for sharing your story. I look forward to hearing more about your condition.
April 19, 2009 - 10:22amThis Comment
No there is no history of it in any of my family having and thanks for your kind words. I will conclude my story later when I have the time. I would like to summarize it because it a very long story to tell
April 16, 2009 - 5:05amThis Comment
Hi, Donna:
Thank you for sharing your story and we'll be waiting for your next report on your condition.
I have a friend, a marathoner, who has a condition that prevents her from feeling the ground under her left foot due to nerve damage. She has to have the nerves stimulated by a little machine so that she can feel the sensation of striking the ground. It's very scary for her - and for the rest of us who worry about her when she goes out on a run by herself. Unfortunately, she is also prone to bone fractures, but keeps on running!
I don't know if your condition is anything like hers, but you made me think of her when you described not being able to get across the street by yourself. Let's hope your doctors will be able to pinpoint what's going on so that you can get appropriate treatment.
Is there any history of this condition in your family?
April 15, 2009 - 5:35pmThis Comment