Hi,and welcome,Im 48 and had Mirena to control heavy periods not fo contraception,I thought it was the best thing ever until a few months ago,read my story below.........
My Mirena was removed on 29th May 2008,it was inserted September 2004.
I had the Mirena put in four years ago,I had terrible pain the day after, it was that bad I was going to go to the hospital Emergency to get the thing out but I put up(the worst thing I done in my life, Im paying for it now) with it and it and the pain got a bit better,had a lot of bleeding (spotting) for the first six months and then it finally went away. For the first year I thought Mirena was Great but then the problems started.I started to gain a lot of weight,facial hair,Very sore breasts, I also had a lump removed from my left breast a couple of years ago, but I didnt know until recently that it was most likely caused by Mirena. Some of the other problems I had, My stomach bloated, I look like I'm six months pregnant ,I have a cyst on my left ovary,dry skin,acne,strange depression,headaches,and the Worst of all I had to have my Thyroids REMOVED on 1st Nov 2006 and I'm pretty sure that was caused by Mirena as well, so now I have to take thyroid Medication for the rest of my life,I had the Mirena removed as soon as I done some searching on the internet for my unexplained medical problems, mainly my weight as I had weighed about the same my whole adult life and now I had put on a few stone and now I have to try and lose it,as for my thyroid I have trouble getting the Meds right its a real pain,blood tests all the time.I just dont feel I have much left in my life,depressed,sick all the time. I eat well as I have high cholesterol so its not that I over ate,I noticed you do feel a lot more like eating sweet things. I found a site called www.curezone.com and found out there are thousands of woman,girls with the same problems as myself and that there is a class action law suit going on to Sue. Its worth having a look at this site it helped me a lot.I feel so bad I dont go out anymore I dont see friends or family I'm to depressed about my weight now. I am in the process of trying to find out if there is a Class Action Law Suit in Australia.If anyone knows of a Class Action in Australia could they Please let me know. After having the Mirena removed about 6 weeks ago I thought I was doing ok only a bit of spotting,but about 3 weeks after having it removed I got my period and the pain was unbearable,I was in agony stomach cramps and I bleed so much I thought I was going to die from blood loss,also the scariest was the huge blood clots,very scary,must of been four years of period in 1 week I couldnt believe how bad it was, I felt really sick and weak,but thank goodness its eased off now after a week. I just hope now I might slowly start and feel like my old self. Im also on medication for heart palpatations,I get Heart palpitations (SVT) a few times a week,I had my heart palpitations just after my thyroid removal op and was put on ecg and my heart rate was 176 Beats per Minute I was rushed to Intensive Care and I had to have an injection called Impending Doom (It makes you feel you are going to die) to slow my heart rate,it worked and I was kept in intensive car for 3 days,very scary thing to go through I hope I never have to go through that again,my heart palpitations got worse while I was on Mirena and now I also take Magnesium to help control them as well as Metoprolol which I have been on for some years and I recently read that if you are on Mirena it increases the side effects of Metoprolol.
So if you have had any bad experiences with Mirena please let us know,it will help others with their problems, hopefully. I just wish I never got Mirena and my advice is DONT its not Worth the risk,if the Doctors had of told me about the BAD side effects I would NEVER of had it put in. Sorry about going on so long, All the best to you all,
I have had it out for 116 days 20 hours now, my painful breasts feel normal again,I hav'nt lost any weight yet, but will soon hopefully,I do feel a lot better but still get some of the symtoms back just before my period.
I get sooo mad when i think of what Mirena done to me and all the other women and how bad some of their side effects have been. I get mad when I read some of the other ladies stories and the terrible things they have gone through ,
Perforations, Miscarriages, IUD's lost in their body,
Hystorectomy,and the rest. I want to wish them all the best, and we WILL get Better and Bayer ,(Mirena ) will PAY some day for what they have done to US..the more complaints to them,the quicker it will be taken off the market,hopefully.
Below is one of the Horror stories taken from my site.......
From a blog I found today....
Wednesday, October 8, 2008
My sisters IUD story
If you have a weak stomach please don't look at the pictures that follow.
I am writing this as my way of preventing another woman from going through what I just did. Please pass this info on to other women and guys you too, don't be shy to help out a friend.
In October of 2007 after the birth of my baby, I decided to get the IUD/IUC (birth control) inserted. My thought was I wouldn't have to remember to take the pill and I wouldn't have to deal with the side effects from them any longer.
So, at my 6 week check up I talked to the Dr. about it and a few weeks later I was in the office again to get it done. I was left in a room to look over the brochure and then the nurse handed me a paper saying these are the side effects, I didn't sign it cause I wanted to hear about a few things first. So, I told her that and she said in order to get it done we need to have you sign and the Dr. would go over it with me when she got in the room. I Remember thinking as I read over the info that it was kind of scary.
I asked the Dr. about the part where it says there is a 1 in 10,000 chance it could get embedded in the uterus. She said there was a risk but has never had anyone have a problem
and I'd be fine. A few more questions and I was on the table ready to get it done. My heart pounding and a sinking feeling of concern I almost said no. But she pushed it and said that I'd be covered right afterwards to have sex again. Hmmm, need I say more?
I have to say it did not feel good at all. They have to induce you to get it done. OUCH!! I was told to take something for pain because I'd be having cramping and some spotting. I did that and a few days later I felt a sharp pain and called her right away. She said it's normal and to come back in 2 weeks for a follow up to make sure it's in the right spot. I did and she did the exam, couldn't find it. No string, no IUD.
She said it must have fallen out. I told her it didn't, but she insisted it had and I didn't notice it. WHAT the FREAK? I was mad and told her to check again and she did nothing. Dr. said it fell out, common. I got pissed and said it didn't fall out, I think I would notice something in the toilet like that.
She did an ultrasound and faintly seen it, but it wasn't visible. I was told to come back in a week for an internal ultrasound. I did and they couldn't see it. Again she was pushing me and I got upset, saying it did not fall out and I'm hurting, please do whatever you can to find it. She sent me to get an x-ray. Guess what? It was in my still and not embedded in my uterus, it was in my abs somewhere.
I went back one week later and she said it's there and we need to do surgery to get it out, but I don't do surgery you'll have to go to another DR. for that and then she gave me a hug and said , "I'm sorry this is happening to you.".. I just looked at her and wanted to body slam her right then and there. Yeah you're sorry, but I was crazy to think it didn't fall out. Yeah ok....
I got a number to another Dr. and made an appt. Seen here and she said I'd have to have a Laparoscopy surgery that is where they use a light-transmitting instrument to view the pelvic organ. The thing that has lights and they are able to make 2 small cuts to see inside the body.
She said it would take over 30 days to schedule and go through the insurance. I agreed to get it done asap. I left so upset, and confused.
Two months later I still didn't hear from the Dr. who was to perform the surgery, so I called and made sever attempts to discuss what was going on, no return call. SO, I finally called my sponsor at the insurance company.
They were so upset that they appointed a Navy Officer to oversee my case as an URGENT patient. I talked to them all for about a few weeks and got a new Dr. who seen me, did a few more tests like another x-ray, a Sonohysterography, It's where they take a saline infused image of the uterus and uterine cavity using ultrasonography while sterile saline is instilled into the uterine cavity. YEAH---Not fun. I think I cried a little.
It was there still, so I was scheduled for surgery on December 26th 2007. Boy was I relieved. FINALLY got someone to listen to me and take care of it.
I had surgery, woke up and was told they couldn't find it. It had moved and they searched without seeing it.
If I wasn't doped up I'd of screamed. After healing from the 2 little scars I had due to that surgery, I had to go back for more tests.
I had to have a Hysteroscopy, a way to look in the uterus. It's a thin, telescope-like device that is inserted into the uterus internally. They couldn't see it.
Then I had another one that hurt like heck, Hysterosalpingogram inject you with dye in the uterus, it flows through the fallopian tubes and uterus.
Since I was trying to keep calm as the dye they injected me with took its course, I said hey isn't that it there?
Sure enough there it was. It had gone from in front (center) to the left by my hip bones. He took sever pics of it and had me go get an x-ray right away. I did and asked the girl taking the x-ray where it was, it had moved to right above my hip bones and under my ribs.
Mind you it started in the front of my body where the uterus lies to the center again. So for an entire year I've been dealing with pain and it moving to hear it moved again.
Appt for surgery was set and on September 17th, 2008; I went in. I woke up and heard they got it, I was so happy. Then he told me where they found it. It was wrapped up and tangled in my intestines. It poked a hole in the fat that lines the intestines, so when they removed it they stitched that up. That is probably why it kept moving. But, I am now IUD free. I also have a nice 6 inch scar on my lower abs. How nice is that 3 kids later, no c-sections and NOW, I get a scar?
But here it the kicker, it wasn't done nice and neat, no I have to get used to it and hope to get someone to cover it up with a new tattoo....
So please if you hear anyone talking about getting one, please pass on my story. Sorry it was so long, but there is so much info to this.
I've looked online and seen countless problems with this brand and others. Not good.
Thanks for reading.
Here is a picture of the Mirena IUD: on the link below....
Here is what it looked like when they found it:
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