hello my name is mikki
IM 49 yrs old , puertorican whose family history consist of 9 diagnosis of breast cancer.
Four suvivors including myself. I was in the military active and reserve for 11yrs.
when I started getting sick really bad migraines so I thought ended up it was a brain tumor pituitary adenoma. I was getting really sick between living in a shelter and moving into my apt. I settled into my apt send my kids off to school started working . I had a counselor who would visit me and insisted i go to a doctor,
In the mist of this diagnosis my background soldier, domestic violence ran to a shelter the whole time still in uniform going to the reserve and saving my checks no longer homeless medical problems became intense. On standby to go to desert storm thank god i was diagnosis right before had to get out. I learned you can run but you cant run from within it stops you dead in your tracks.
2005 , I was losing so much weight my job though i was on a diet , i went to endocrine for a follow up because the dr. said something is not right. When I went back she had moved to newjersey. A new doctor saw me i said im losing weight ect is it my growth hormone , he said no i dont know what is wrong with you but its not hormonal. WRONG MY PATHOLOGY REPORT TUMOR MADE UP OF ESTROGEN . my body keeps blinking and i have to fight to keep the light on.
Im 45 now and for years i have been going for mammo's cyst three oclock left breast. I had fibrocystic breast . I was set up for biopsy aspiration but the cyst was solid biopsy schedule , the doctor cut at 6 oclock not 3 therefore removing nothing . 2005 the cyst is biopsy again and a 2.5 found in the breast tail.
here we go its Cancer i take off running 2 opinion , 3rd opinion, mri of the breast yeah dcis in both , my life is anything but boring i end up at MEMORIAL SLOAN KETTERING. BIlateralmasectomy, chemo, breast reconstruction to breast implants. Chemo sucks, i thought i look bad with acromegaly that went out the window ,when i look in the mirror no hair , no eyebrows, no eyelashes, i look like potato head without the accessories. Memorial sloan is so caught up in its name the nurses are great , love my plastic surgeon DR.JOSEPH DISA, but when my breast were remove the breast fat in my right breast was just pushed aside and left inside of me. Dr called me the night before do you want to remove both breast are you sure , my response are you kidding i have dcis in both i came to you with mri results , which i had done again, at memorial brought you the biopsy slides everything you need yes both breast. I was never told till 2 years later by my plastic surgeon for him to shedule for liposuction to remove the fat. never had it done there was scheduling conflicts and when i tried my job change insurances. I go to the VA hospital my oncologist send me to they surgeon ,who told me why don't i go from saline to silicone we will give you bigger breast . I explained about the breast fat they say oh no you were probably heavier at one time. We will give you new breast and remove the fat. I was humiliated my response was I don't want bigger breast I don't work on a strip pole.
Im a paranoid patient wondering is it normal for ovarian cyst never to disappear .
To top it of im brac 2 positive and don't trust having them. all my test negative ca125 ect, im menopausal since june no menstral. My primary say they are too small to take out 1.4/1.5 centimeters. I go through headaches , vomiting to the point i black out ,and now take imetrex injections, my chest muscles become very painful with spasms and under my armpits, its like pms really bad , but i dont have breast. Before I was diagnosis my cpk was 700 it went down. but in april 09 it was going back up170. Is there a connection because i couldnt get diagnosis but the cpk was the only abnormal test , and its working its way up again. Should i have my ovarian cyst remove to beat the turning into cancer.
I hope my experience helps someone always keep an updated copy of your medical records, for second opinions, listen to your body if you feel there is something wrong you could be right. If you don't feel comfortable with a doctor change doctors. Do your research just because a hospital is reputable doesn't make it better then your prefered one.
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HI DIANE
January 28, 2010 - 5:13pmI WAS IN THE NEUROLOGIST OFFICE YESTERDAY AND HE TOLD ME UR OKAY AS FAR AS UR HEAD LOL
PICK UP YUR MEDICATIONS FOR UR HEADACHES AND GO TO SEE THE ONCOLOGIST TELL HIM U WANT TO SEE THE PETSCANS AND EVERYTHING ESLE.
I DID CHECK IN AT THE PHARMARCY, GO TO ONCOLOGY AND HE SHOWED ME ULTRASOUND , REPORTS,
BUMMER A BLACK SPOT , AND A SMALLER ONE , NO BLOOD FLOW BUT DID NOT HAVE NO DIAGNOSIS NOT ENOUGH CELL BLOCK SPECIMEN. SO BACK TO THE DRAWING BOARD I ASK HIM CAN HE PLEASE EMPHASIZE THAT ONLY THE DR DO THE PROCEDURE CLASS IS OVER. WENT TO THE ENDOCRINE CLINIC SET UP THE APPT , FEB 17 I TOLD THE NURSE NOBODY BUT THE DR SHE AGREED. I WALK HOME ABOUT A MILE IPOD ON GOING IN THE ZONE ALL I WANTED WAS A VANILLA LATTE. LOL
HERE WE GO AGAIN.
IM MORE CONFIDENT READY TO DEAL WITH AND GET IT OVER ,
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Hi, Mikki,
I'm so glad to get your update. I have a few questions for you.
How is your eye? Has the bloodshot part gone away?
On the ultrasound report, you have one black spot or two? And this is an ultrasound of where, the thyroid?
With no blood flow, would that be a good sign, according to your doctor?
And Feb. 17 you will have another thyroid biopsy? Is that right?
Vanilla latte coming right up, Mikki. A huge one.
January 29, 2010 - 8:12amThis Comment
I SAW MY ULTRASOUND OF THE THYROID. THERE A ARE 2 SPOTS ONE LIKE A DIME, ANOTHER ONE SMALLER . THERES NO BLOOD FLOW THATS GOOD TIME FOR THE BIOPSY.
January 29, 2010 - 10:33amMY EYES ARE STABLE HAD CHEMO DONE TWICE LAST YEAR TO PREVENT BLOOD VESSELS SEEPING THROUGH THE MEMBRANE. FEB 17 BIOPSY LETS GET IT RIGHT.
VANILLA LATTE SOUNDS SO GOOD.
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My next step is wednesday morning . Its that my body is like a plantation always something developing.
January 4, 2010 - 10:02amMy sister ask how do I feel turning 50 this year. I dont know , I do want to celebrate because IM alive and kicking , my mother passed away from breast cancer during her fifth year. I was diagnosis in 05 now we are in 2010. As far as my thyroid my attitude save it or take it out lets keep it moving. I want to go on a cruise for my fabulous 50. lol red and all.
Thanks for reading this Diane your a great inspiration.
mikki
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THANK YOU , THANKS FOR THE FINGER CROSSING .
November 29, 2009 - 12:02pmThis Comment