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Rare Diseases Join this Group

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Rare Form of Epilepsy - Dravet Syndrome cbegun Leader
by cbegun 3 years ago
Jump to Last Post 		0756
Progeria: The Aging Disease in Children cbegun Leader
by cbegun 5 years ago
Jump to Last Post 		02173
Rare Disease Day cbegun Leader
by cbegun 5 years ago
Jump to Last Post 		14085
Susan Krug's Story: Life with Hypophosphatasia (HPP) cbegun Leader
by cbegun 5 years ago
Jump to Last Post 		02691
Rare Disease - Hypophosphatasia cbegun Leader
by cbegun 5 years ago
Jump to Last Post 		01553

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There are so many diseases that don't have enough information, resources or support especially those that are rare conditions. This group, I hope, provides a place where women can start to find the information they are seeking with others looking to share experiences, and insights. This is a more targeted location for rare diseases specifically.

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