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Pulmonary Fibrosis Diagnosis: How Should A Patient Be Notified?

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Joan describes the best way for a doctor to tell a patient she has the fatal lung disease pulmonary fibrosis (IPF).

But when the doctors are telling you that you have this disease they need to say, “We need to have someone in the room with you that can hear what I am going to tell you.” They need to give you a little bit of hope. When I found this out and I got the book from the foundation I had a total melt down. I was in tears and I called the foundation.

I also called my doctor’s office in Boise. She was very concerned. She said, “Joan, is there someone with you?” And I was just sobbing. I said, “No there isn’t,” and she said, “Would you call a neighbor? We don’t want you to be alone,” and so I would say to the doctors, “You’ve got to be more compassionate; give your patients a little bit of hope.”

Now it’s going on three years – they saw it the 1st of May so it will be three years. They gave me two to four years and you know, I have made a decision – I am not going to go down easy.

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Learn More by Visiting the Pulmonary Fibrosis Foundation

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