Resource Guide for Myelodysplastic Syndrome (MDS)

American Cancer Society (ACS)

Phone:
1-800-ACS-2345

Internet address:
http://www.cancer.org

Description of services provided:
The American Cancer Society is a nationwide organization with more than 3,400 local offices. This site provides information on preventing cancer, saving lives, and diminishing suffering from cancer. Here you will also find information on research, education, advocacy, and service.

The Association of Cancer Online Resources (ACOR)

Internet address:
http://www.acor.org/

Description of services provided:
This site offers publications, disease-specific information, clinical trial information, mailing lists, and lists of caregiver and referral services.

Cancer Care, Inc

Address:
275 7th Avenue
New York, NY 10001

Phone:
1-212-712-8400
1-800-813-HOPE (4673)

Internet address:
http://www.cancercare.org/

Description of services provided:
Cancer Care Inc. provides free professional help to people with all forms of cancer through counseling, education, information, referral, and direct financial assistance.

National Cancer Institute

Address:
NCI Public Inquiries Office
Suite 3036A
6116 Executive Boulevard, MSC 8322
Bethesda, MD 20892-8322

Phone:
1-800-4-CANCER (1-800-422-6237)

Internet address:
http://cancer.gov/

Description of services provided:
The National Cancer Institute provides information on clinical trials, statistics, research programs, research funding, and many other matters relating to cancer, including MDS.

The American Society of Hematology

Address:
1900 M Street, NW, Suite 200
Washington, DC 20036

Phone:
202-776-0544

Internet address:
http://www.hematology.org/

Description of services provided:
The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems. The organization accomplishes this mission by promoting research, clinical care, education, training, and advocacy in hematology.

The Myelodysplastic Syndromes (MDS) Foundation

Address:
PO Box 353
Crosswicks, NJ 08515

Phone:
1-800-MDS-0839
1-609-298-6746 (outside US)

Internet Address:
http://www.mds-foundation.org/

Description of services provided:
Created to "provide an ongoing exchange of information related to MDS," the Foundation offers news, including upcoming legislation, recommended medical centers for treatment, research results, and a listing of links to related websites. The "Patient Information" page covers Medicare, government assistance, medication assistance, as well as information on medications. You can also find a patient handbook and other articles.