Resource Guide for Sickle Cell Disease

American Academy of Pediatrics

Address:
141 Northwest Point Boulevard
Elk Grove Village, IL 60007-1098

Phone:
1-847-434-4000

Internet address:
http://www.aap.org/

Description of services provided:
The American Academy of Pediatrics is a great resource for both parents and health professionals. Included on the site is a detailed policy statement on how best to manage sickle cell disease called "Health Supervision for Children with Sickle Cell Disease."

Sickle Cell Disease Association of America

Address:
231 E. Baltimore St., Suite 800
Baltimore, MD 21202

Phone:
1-800-421-8453

Internet address:
http://www.sicklecelldisease.org/

Description of services provided:
This site includes information on sickle cell disease, how to cope with its complications, who is affected, and how to join in efforts to research treatments. A chat room allows you to chat online with other people interested in sickle cell disease. Information on conferences, news releases, and a newsletter allow you to stay up-to-date on the latest research efforts.