Hello to all fellow trigonitis sufferers. I hope you all feel better than the last time you've posted here. I'm dealing with this horrible illness as well. My problems started in 2015 July, when I started having UTI's that eventually lead to cystitis and then it became a trigonitis. I have been diagnosed with it in June 2016, my urologist did a cystoscopy and saw a bit of redness there, that is not supposed to be there. She gave me antibiotincs (doxycilin) and suggested to do cystistat treatment. I refused doing it, since cystoscopy itself brought so much pain, I couldn't imagine dealing with familiar pain weekly during the treatments. My symptoms are constant urinating and stomach ache (in the lower belly). I've tried so many natural remedies, antibiotics, antidepressants, you name it... and nothing. And so many urologists, just like some of you say here do not deserve their doctor's name - they have no idea about this illness. It's heartrbreaking, since this illness stops you from having any kind of normal life.
Now I've recently had another cystoscopy (since I started feeling way worse) and my trigone are is even worse (altho after previous cystoscopy I had tried so many natural remedies, hoping it would go away). My bladder and blood tests are all clear (it's a very common case when having trigonitis). My doctor suggested cystistat once again or botox. I don't really understand how botox could help in trigonitis case, since it's being used usually used for overactive bladder syndrome. So I guess I'll have no choice but do the cystistat treatment. I may inform you on here how it goes, I have a lot of hope for it. If someone is having this treatment at the moment, please share how you are feeling.
Some things that helped me a bit:
Tea made from dry silene flowers (silene latifolia). You put dry flowers and just pour boiling water. Doesn't taste incredible, but it will make you feel better.
Parsley tea
Always pee before and after sex. (I had no idea about this before and had no problems)
Cymbalta x Amitrypletine antidepressants combo - helps with pain and makes you want to urinate less.
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Hello to all fellow trigonitis sufferers. I hope you all feel better than the last time you've posted here. I'm dealing with this horrible illness as well. My problems started in 2015 July, when I started having UTI's that eventually lead to cystitis and then it became a trigonitis. I have been diagnosed with it in June 2016, my urologist did a cystoscopy and saw a bit of redness there, that is not supposed to be there. She gave me antibiotincs (doxycilin) and suggested to do cystistat treatment. I refused doing it, since cystoscopy itself brought so much pain, I couldn't imagine dealing with familiar pain weekly during the treatments. My symptoms are constant urinating and stomach ache (in the lower belly). I've tried so many natural remedies, antibiotics, antidepressants, you name it... and nothing. And so many urologists, just like some of you say here do not deserve their doctor's name - they have no idea about this illness. It's heartrbreaking, since this illness stops you from having any kind of normal life.
Now I've recently had another cystoscopy (since I started feeling way worse) and my trigone are is even worse (altho after previous cystoscopy I had tried so many natural remedies, hoping it would go away). My bladder and blood tests are all clear (it's a very common case when having trigonitis). My doctor suggested cystistat once again or botox. I don't really understand how botox could help in trigonitis case, since it's being used usually used for overactive bladder syndrome. So I guess I'll have no choice but do the cystistat treatment. I may inform you on here how it goes, I have a lot of hope for it. If someone is having this treatment at the moment, please share how you are feeling.
Some things that helped me a bit:
Tea made from dry silene flowers (silene latifolia). You put dry flowers and just pour boiling water. Doesn't taste incredible, but it will make you feel better.
Parsley tea
Always pee before and after sex. (I had no idea about this before and had no problems)
Cymbalta x Amitrypletine antidepressants combo - helps with pain and makes you want to urinate less.
S.
March 3, 2017 - 12:49pmThis Comment
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