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Anonymous (reply to Jo)

Sorry to reply to you Jo, but I just came across this and can't figure out how to reply to Jess. Would you please post it to her?

I was diagnosed with Trigonitis in 1993 at the Mayo Clinic. Couldn't find any urologists who knew what was wrong with me in the entire Kansas City area. At least there are some things online about it now. Back then finding anything about it was as scarce as hen's teeth.

I am sorry to say the only thigs I know that will help you will take time.
1. Always sit on a hard flat surface.
2. Always sit with your legs apart.
3. Stay out of cars as much as possible. The motion makes it worse. They told me this at Mayo.
4. Wear very loose clothing around your waist. This is the hardest one.

If you can do these things for a while it will help a great deal. I am sorry but I started these so long ago I don't remember how long it took. I have had to buy only slacks with elastic in the waist, remove it and put in a very loose elastic with adjustable velcroe strips and I don't sew. You will learn to do these things if you want to be rid of the pain bad enough and the feeling of having to constantly pee. I had to figure out three of these things by myself. I hope you can benefit from my experience. My heart goes out to you.

Sherry

June 14, 2009 - 2:06pm

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