I have to deal with trigonitis myself. Good thing I got to the urologist as soon as I started feeling "weird". My "weird" is that I feel like there is something up my butt, like a scab, it's hard to explain. I insisted on a cystoscopy, and there it was...that disgusting ulcer, wound, leision, call it whatever. Monday I have an appointment for a pap, just to rule out any bacteria, and then off to therapy. Here in Europe, we use this medication which is given with a catheter once a week. It heals the wound. Sorry, but trigonitis for me is pain, and hell. I can't deal. I don't have urgency to urinate, nor does it hurt when I urinate, but when I walk or just do my everyday thing, the wound lets me know it's there. Unfortunately because I had this problem in the past, and because i started feeling normal and great, I never bothered going back for a couple repeat therapies, so it came back 2 years later, after my carelessness of not changing my wet bathingsuit, etc, etc. It came back but not as bad as the first time. The first time I wanted to die, I was also running around like a chicken without a head for a full year before I found this God sent urologist. It made me realize that most doctors have NO idea what they are talking about. I wish I had found him right away, it would have saved me a lot of pain, time, money, depression etc. Anyways, I will keep you all informed as to how it goes. All I know is that any pills, or meds I took did nothing. The only thing that worked for me was the therapy with the catheter. I have to find out what this medicine is called. It's the wonder medicine. It makes you feel like your bladder is covered with velvet. There is hope girls, you just have to find the right doc and the right medication. Antibiotics WONT do it. The will kill bacteria that may have caused the trigonitis, but they wont get rid of the lesion. I will post my news next week, and I will ask my doc about why docs dont recommend this therapy in the U.S.
I wish you girls all the best...and this site is really helpful, because you know you are not alone, and hope can be given from communicating our experience.
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I have to deal with trigonitis myself. Good thing I got to the urologist as soon as I started feeling "weird". My "weird" is that I feel like there is something up my butt, like a scab, it's hard to explain. I insisted on a cystoscopy, and there it was...that disgusting ulcer, wound, leision, call it whatever. Monday I have an appointment for a pap, just to rule out any bacteria, and then off to therapy. Here in Europe, we use this medication which is given with a catheter once a week. It heals the wound. Sorry, but trigonitis for me is pain, and hell. I can't deal. I don't have urgency to urinate, nor does it hurt when I urinate, but when I walk or just do my everyday thing, the wound lets me know it's there. Unfortunately because I had this problem in the past, and because i started feeling normal and great, I never bothered going back for a couple repeat therapies, so it came back 2 years later, after my carelessness of not changing my wet bathingsuit, etc, etc. It came back but not as bad as the first time. The first time I wanted to die, I was also running around like a chicken without a head for a full year before I found this God sent urologist. It made me realize that most doctors have NO idea what they are talking about. I wish I had found him right away, it would have saved me a lot of pain, time, money, depression etc. Anyways, I will keep you all informed as to how it goes. All I know is that any pills, or meds I took did nothing. The only thing that worked for me was the therapy with the catheter. I have to find out what this medicine is called. It's the wonder medicine. It makes you feel like your bladder is covered with velvet. There is hope girls, you just have to find the right doc and the right medication. Antibiotics WONT do it. The will kill bacteria that may have caused the trigonitis, but they wont get rid of the lesion. I will post my news next week, and I will ask my doc about why docs dont recommend this therapy in the U.S.
I wish you girls all the best...and this site is really helpful, because you know you are not alone, and hope can be given from communicating our experience.
Talk to you all soon
September 2, 2009 - 11:48amL
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