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(reply to Anonymous)

Hi, sorry I haven't logged in for a while. Well in the past I had six treatments myself, and YES i felt soooo much better, not one hundred percent, about eighty. I went back to the doctor about six months afterwards, had another cystoscopy and he saw that there was a bit of the lesion left. I had 3 more therapies and then I was fine.. Now Im suffering, because of my own carelessness and I have a scheduled 10 therapies. five weekly and then one each month for five months. Or six and four. Im waiting for the medicine three weeks now and Im getting really frustrated, because it takes a while for your dosages to get to the hospital. They dont have a huge stock, as i understand that they cost two hundred and fifty EURO per time!!!! Anyways, Im in pain, Im taking pain killers and Im really frustrated and psychologically on the down side because of the pain. It's that burning in your bladder that is always there. It doesn't hurt when I pee, but usually at night when I go to bed I am reminded that I am not OK. Anyways, Im keeping my fingers crossed that the meds will arrive soon and I will be on my way to getting well. Don't worry, I think you need a few more treatments. You will be fine. Just a few more. Maybe get another cystoscopy to see what's going on inside. Unbelievable how such a small lesion can cause so much pain. Pain that really nobody who hasn't experienced this awful thing can understand. Good luck. I will keep posts on the progress when I eventually start.

October 18, 2009 - 1:37pm

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