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EmpowHER Guest
Anonymous

My wife and I have been married for 16 years and I knew of her potential prognosis when we said I do. I am 46 and she 52. She has Autoimmune Hepatitis along with Primary Schlerosing Colangitus(bile duct).she has had the disease for 22 years and will need a liver transplant or this is fatal. Our marriage was great the 1st 8 years and then her career took off. Although the freedom of the money was nice, our marriage suffered as I began to take a backseat to her work(I do still have my career and work). I was decidedly unhappy and sought help and counseling through our church. Shortly after, her health began to decline to the point that her career ended and severe depression started. She is now disabled and have spent approx. 40+ hospitalizations in the last 6 years. We have been through an addiction to pain meds and live with her Encaphalopathy (extreme confusion and lethargic) on most days. We haven't been intimate in 5 years. Although I love her and miss her very much, I don't know if I will ever have HER back. I work 50+ hrs a week as and then take care her with minimal help from her family. I have been blessed with a great group of friends who often applaud me and then ask how do you do it. I am lonely and feel trapped. I don't WANT to leave, but I feel I NEED to in order to survive this myself. I feel selfish and unworthy of this responsibility anymore.

September 30, 2014 - 6:18am

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