I realize this thread began several months ago but there are woman like me out there researching treatment for endometriosis who will stumble upon this thread for a potentially very long time - so the more feedback the better. I strongly discourage Lupron. I was diagnosed with end 8 years ago and today learned that I will need a third surgery for the removal of cysts. I have needed surgery every 3 years - almost right on the dot. The first time I did Lupron injections twice in 6 months. I had what I thought was a pretty terrible experience with it including suicidal thoughts for the first time ever in my entire life. Never before the Lupron and never since therapy ended have I ever had suicidal thoughts. I also went into full blown "false" menopause with all the symptoms our mothers and grandmothers have ever warned about it. As bad as all of that was I did not suffer long term effects like some women in this thread. And it's really a pointless therapy. It's intention is to keep the regrowth of endo at bay but it is NOT a cure. You're endo will return....there is no cure for endo. Lupron slows down the growth but not by long. An extra year without sypmptoms, two years if your lucky - three years if your blessed...but it will return. I have the most success with acupuncture. The noticeable change in my symptoms was immediate but I stopped going when the economy tanked and my husband was laid off from his job. We're back on our feet and I'm considering going against my doctor's wishes and saying no to a third surgery at least while I return to acupuncture and track my health that way. I just can't deal with going completely under anesthesia for a third time in 8 years...it's dangerous.
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I realize this thread began several months ago but there are woman like me out there researching treatment for endometriosis who will stumble upon this thread for a potentially very long time - so the more feedback the better. I strongly discourage Lupron. I was diagnosed with end 8 years ago and today learned that I will need a third surgery for the removal of cysts. I have needed surgery every 3 years - almost right on the dot. The first time I did Lupron injections twice in 6 months. I had what I thought was a pretty terrible experience with it including suicidal thoughts for the first time ever in my entire life. Never before the Lupron and never since therapy ended have I ever had suicidal thoughts. I also went into full blown "false" menopause with all the symptoms our mothers and grandmothers have ever warned about it. As bad as all of that was I did not suffer long term effects like some women in this thread. And it's really a pointless therapy. It's intention is to keep the regrowth of endo at bay but it is NOT a cure. You're endo will return....there is no cure for endo. Lupron slows down the growth but not by long. An extra year without sypmptoms, two years if your lucky - three years if your blessed...but it will return. I have the most success with acupuncture. The noticeable change in my symptoms was immediate but I stopped going when the economy tanked and my husband was laid off from his job. We're back on our feet and I'm considering going against my doctor's wishes and saying no to a third surgery at least while I return to acupuncture and track my health that way. I just can't deal with going completely under anesthesia for a third time in 8 years...it's dangerous.
December 29, 2009 - 8:54pmThis Comment
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