I was diagnosed with Endometriosis in 2006. I've had a laproscopy the first time in November '06, and got my first dose of Lupron (the one month 3.75mg dose). It worked great for pain management at first, there were no signs of a period. The only thing that bothered me was the night sweats, the hot flashes in the day, the moodiness/crying spells and a loss of a sex drive. I continued to get the injection for months to come, and a year from my first surgery, i had a laporotomy done, The endometriosis cells had grew back twice as bad. So instead of having them cauterized, they cut each cell out and cauterized the wounds. I was given a higher dosage of Lupron to hopefully "nip it in the bud" and prevent the endometriosis from coming back. The higher dosage worked for a couple of months then I began to hemmorhage. The pain was worsening and I began to feel pain in my hips and knees. The lupron injection was no longer working for me so my doctor had switched me to the Zoladex implant (A gel-like capsule that is injected into your belly fat, which slowly releases over a 3 month period).. Zoladex worked GREAT. ..until I could no longer afford it, I had no medical coverage and it was costing 1300 $ every 2.5 months. I was also unable to work at the time due to the chronic pain. My doctor then put me back on the Lupron, but I still was having periods and pain and decided to come off of it. To this day I still havnt had a period, it has been 6 months with no Lupron, or any type of birth control. I am 22 years old. I am very upset and distraught because not only am I not ovulating (I've also taken countless pregnancy tests), But i have CHRONIC pain in my hips and knees... I dont think the Lupron is beneficial in the long haul what so ever. I used to be a healthy and active twenty something year old, and now I sleep with a pillow between my knees at night for the pain. I also can't walk long because it feels like someone hit my knees with a sledgehammer.
PLEASE. Reconsider when thinking about trying this drug, it needs more research to be done on it... Stop using us as guinea pigs. We've suffered long enough,
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I was diagnosed with Endometriosis in 2006. I've had a laproscopy the first time in November '06, and got my first dose of Lupron (the one month 3.75mg dose). It worked great for pain management at first, there were no signs of a period. The only thing that bothered me was the night sweats, the hot flashes in the day, the moodiness/crying spells and a loss of a sex drive. I continued to get the injection for months to come, and a year from my first surgery, i had a laporotomy done, The endometriosis cells had grew back twice as bad. So instead of having them cauterized, they cut each cell out and cauterized the wounds. I was given a higher dosage of Lupron to hopefully "nip it in the bud" and prevent the endometriosis from coming back. The higher dosage worked for a couple of months then I began to hemmorhage. The pain was worsening and I began to feel pain in my hips and knees. The lupron injection was no longer working for me so my doctor had switched me to the Zoladex implant (A gel-like capsule that is injected into your belly fat, which slowly releases over a 3 month period).. Zoladex worked GREAT. ..until I could no longer afford it, I had no medical coverage and it was costing 1300 $ every 2.5 months. I was also unable to work at the time due to the chronic pain. My doctor then put me back on the Lupron, but I still was having periods and pain and decided to come off of it. To this day I still havnt had a period, it has been 6 months with no Lupron, or any type of birth control. I am 22 years old. I am very upset and distraught because not only am I not ovulating (I've also taken countless pregnancy tests), But i have CHRONIC pain in my hips and knees... I dont think the Lupron is beneficial in the long haul what so ever. I used to be a healthy and active twenty something year old, and now I sleep with a pillow between my knees at night for the pain. I also can't walk long because it feels like someone hit my knees with a sledgehammer.
PLEASE. Reconsider when thinking about trying this drug, it needs more research to be done on it... Stop using us as guinea pigs. We've suffered long enough,
October 22, 2010 - 9:08amThis Comment
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