Plaquenil helped me both times. I took it 6 months each time. I can relate to the pain. 15 years ago when I was diagnosed, I had no use of my arms. They ached so bad and had no strength at all. The closest I can describe it ......like someone drilled holes down into the bone and pooled the hole with acid. It never went away. It lasted about 18 months. The first time, it took about 4-5 years before I felt normal. The first 2 years, Doctors said it was all in my head. Finally I was sent to a rheumatologist and she ran blood tests saying I had fibromyalgia and sjogrens. This occurred after having my daughter.
FAST FORWARD to January 2007. 6 months after having my son, I start having racing heart, panic attacks, spiked blood pressure. Then seemed to catch the flu every 5-6 weeks over a 15 month period. Then I my right arm ached. 6 months later it stopped. Then Superbowl Sunday 2009, severe leg pain that lasted a year.
My family doctor put me on plaquenil and that helped for a while then after 9 months i went off it. Then the leg pain started a couple of months later. The Rheumy said it was bursitis and gave me steroid shots. I had a bad reaction, felt nauseous for a month and the pain came right back. It was then my neighbor reminded me of vitamins for aches and pains. Her close friend has a herbal business.
WHAT HELPED.....high doses of vitamin C, D, magnesium, Bcomplex. 2-3 times a day and the pain was gone in 6 weeks. I still have trouble walking as the doctor said the muscles had weakened. So i'm doing light weights and exercising to rebuild them.
HOW MUCH TO TAKE.....????
2000mg Vitamin C
1000 mg magnesium
5000 vitamin D
with milk , morning and night
in the afternoon,
B complex (highest one I could find)
siberian ginseng
After reading so much the past 3 years, I believe Sjogren's may be part run down from stress and lack of sleep (hence after having a baby) and poor nutrition.
I remember reading a medical article theorizing that autoimmune diseases could easily be from vitamin deficiencies. And VITAMIN D deficiency is becoming an epidemic again like it was a century ago. Google it.......UK has a return of rickets and other illnesses due to Vitamin D deficiency.
PLEASE TRY THE VITAMINS. YOU AREN'T OUT ANYTHING AND THEY AREN'T DANGEROUS. THE ONLY SIDE EFFECT MIGHT BE DIARRHEA AND THEN YOU CAN CUT BACK ON THE VITAMIN C OR MAGNESIUM.
And I don't buy the expensive brands. Walgreens had the best B complex I could find with higher concentrations. Walmart has plenty of cheap vitamins as well.
Comment Reply
Plaquenil helped me both times. I took it 6 months each time. I can relate to the pain. 15 years ago when I was diagnosed, I had no use of my arms. They ached so bad and had no strength at all. The closest I can describe it ......like someone drilled holes down into the bone and pooled the hole with acid. It never went away. It lasted about 18 months. The first time, it took about 4-5 years before I felt normal. The first 2 years, Doctors said it was all in my head. Finally I was sent to a rheumatologist and she ran blood tests saying I had fibromyalgia and sjogrens. This occurred after having my daughter.
FAST FORWARD to January 2007. 6 months after having my son, I start having racing heart, panic attacks, spiked blood pressure. Then seemed to catch the flu every 5-6 weeks over a 15 month period. Then I my right arm ached. 6 months later it stopped. Then Superbowl Sunday 2009, severe leg pain that lasted a year.
My family doctor put me on plaquenil and that helped for a while then after 9 months i went off it. Then the leg pain started a couple of months later. The Rheumy said it was bursitis and gave me steroid shots. I had a bad reaction, felt nauseous for a month and the pain came right back. It was then my neighbor reminded me of vitamins for aches and pains. Her close friend has a herbal business.
WHAT HELPED.....high doses of vitamin C, D, magnesium, Bcomplex. 2-3 times a day and the pain was gone in 6 weeks. I still have trouble walking as the doctor said the muscles had weakened. So i'm doing light weights and exercising to rebuild them.
HOW MUCH TO TAKE.....????
2000mg Vitamin C
1000 mg magnesium
5000 vitamin D
with milk , morning and night
in the afternoon,
B complex (highest one I could find)
siberian ginseng
After reading so much the past 3 years, I believe Sjogren's may be part run down from stress and lack of sleep (hence after having a baby) and poor nutrition.
I remember reading a medical article theorizing that autoimmune diseases could easily be from vitamin deficiencies. And VITAMIN D deficiency is becoming an epidemic again like it was a century ago. Google it.......UK has a return of rickets and other illnesses due to Vitamin D deficiency.
PLEASE TRY THE VITAMINS. YOU AREN'T OUT ANYTHING AND THEY AREN'T DANGEROUS. THE ONLY SIDE EFFECT MIGHT BE DIARRHEA AND THEN YOU CAN CUT BACK ON THE VITAMIN C OR MAGNESIUM.
And I don't buy the expensive brands. Walgreens had the best B complex I could find with higher concentrations. Walmart has plenty of cheap vitamins as well.
[email protected] if you would care to chat more.
September 29, 2010 - 6:41amThis Comment
Reply