Just wanted to let you know your not alone in NC 11/17 my 13 year old son had a mri the results came back as a arachnoid cyst of the posterior fossa we were sent to Brenners 11/23 where we were told we don't think his symptons pertain to the cyst in the back of his brain. Note the person who first read the MRI stated he had Dandy Walker which is awful and we've had a really rough past week. But more about the dr stated my son would have to have surgrey but he wanted him back in 3 months for anothe MRI to see if the cyst has grew and if there is more cerebrospinal fluid on the brain..per his words he's had this for at least 8 years I don't see that 3-6 more months will hurt anything..Note the only reason he knew the timeline was due to my sons pass out spells & black outs. This consultation alone bothered mr to no means I have researched hours beyond hours on this condition as well contacted Duke because I want a 2nd opinion I just can't live without one when it comes to my sons life. I finally got the call yesterday evenin with the size of the cyst 2inX3in (5.1cmX7.8cm) this is a nice size mass which we were told it wasn't big at all. Okay I'd like for these dr's that continue to turn there head to this serious disease to walk aeound with a cyst in the back of there brain that size or larger or any size for that matter..as well walk aeound with all these sypmtoms that my son is walkin around with, or you or your loved one...I'm thinking it would be took serious then. Today Duke called my son has a appt with Dr Grant at Duke 12/31 he was highly recomended by the office of Allen Freedman who performed Ted Kennedys surgrey. I feel like maybe I'm getting somewhere now...My sons issues came and went over the years until he had head trauma a little over a month ago...they are so bad now and new ones comin by the day...please advise the size of your childs cyst. I will keep you and your family in my prayers.
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Just wanted to let you know your not alone in NC 11/17 my 13 year old son had a mri the results came back as a arachnoid cyst of the posterior fossa we were sent to Brenners 11/23 where we were told we don't think his symptons pertain to the cyst in the back of his brain. Note the person who first read the MRI stated he had Dandy Walker which is awful and we've had a really rough past week. But more about the dr stated my son would have to have surgrey but he wanted him back in 3 months for anothe MRI to see if the cyst has grew and if there is more cerebrospinal fluid on the brain..per his words he's had this for at least 8 years I don't see that 3-6 more months will hurt anything..Note the only reason he knew the timeline was due to my sons pass out spells & black outs. This consultation alone bothered mr to no means I have researched hours beyond hours on this condition as well contacted Duke because I want a 2nd opinion I just can't live without one when it comes to my sons life. I finally got the call yesterday evenin with the size of the cyst 2inX3in (5.1cmX7.8cm) this is a nice size mass which we were told it wasn't big at all. Okay I'd like for these dr's that continue to turn there head to this serious disease to walk aeound with a cyst in the back of there brain that size or larger or any size for that matter..as well walk aeound with all these sypmtoms that my son is walkin around with, or you or your loved one...I'm thinking it would be took serious then. Today Duke called my son has a appt with Dr Grant at Duke 12/31 he was highly recomended by the office of Allen Freedman who performed Ted Kennedys surgrey. I feel like maybe I'm getting somewhere now...My sons issues came and went over the years until he had head trauma a little over a month ago...they are so bad now and new ones comin by the day...please advise the size of your childs cyst. I will keep you and your family in my prayers.
November 25, 2009 - 2:14pmThis Comment
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