In reading this, I feel as though I am reading about myself. This seems to be a typical response with neurosurgeons that these cyst do not "normally" cause ymptoms. Well, to me, normally means that they do not always, but "can" cause them. And I heard the exact same excuse for a long, long time as I continually went downhill. I had to keep searching for a doctor who would believe me, as well as understand what these cysts are capable of. This was Dr. Robert Spetzler in Phoenix. I just had moved to Albuquerque, NM so he was my neurosurgeon of choice out at Barrow's neurological Center. He told me if I continued to let it grow, I was headed for seizures and possibly death. So thank God for him. I now live in Greensboro, NC and go to Duke as my follow-up care. Dr. Allan Freidman is my neurosurgeon there too. He is amazing. So kind, and so thoughtful...and he listens. Good luck with your endeavors. I would be interested to know what course of action is taken. Your family will be in my thoughts and prayers.
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In reading this, I feel as though I am reading about myself. This seems to be a typical response with neurosurgeons that these cyst do not "normally" cause ymptoms. Well, to me, normally means that they do not always, but "can" cause them. And I heard the exact same excuse for a long, long time as I continually went downhill. I had to keep searching for a doctor who would believe me, as well as understand what these cysts are capable of. This was Dr. Robert Spetzler in Phoenix. I just had moved to Albuquerque, NM so he was my neurosurgeon of choice out at Barrow's neurological Center. He told me if I continued to let it grow, I was headed for seizures and possibly death. So thank God for him. I now live in Greensboro, NC and go to Duke as my follow-up care. Dr. Allan Freidman is my neurosurgeon there too. He is amazing. So kind, and so thoughtful...and he listens. Good luck with your endeavors. I would be interested to know what course of action is taken. Your family will be in my thoughts and prayers.
January 14, 2010 - 11:25amThis Comment
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