hi my 13yr old son has a posterior Fossa Arachnoid Cyst. I have the mri reports and none of them say what the size of it is just listed as large. In the last 3 months we have been to nerologist and nero surg. btw he also has posibly marfans synd. The nerg surg said on first visit that it would have to be drain ( in hosp or with shunt) on last visit she seemed to do 180 now wants to do nothing. the nerologist said that it would have to be drain do to location is it common to have this back and forth. I worry that if they do nothing he could have worse problems. I live in Fl and would love to hear about some really good dr that know what they are doing down here. He has had many of the common symptoms. My worry is the he will start having the seiures that i know can cause long term nerologic problems and he trys to have such a normal life when he is symptom free and is very active. Any advice or suggestion in how to get him the best treatment would be appreciated.
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hi my 13yr old son has a posterior Fossa Arachnoid Cyst. I have the mri reports and none of them say what the size of it is just listed as large. In the last 3 months we have been to nerologist and nero surg. btw he also has posibly marfans synd. The nerg surg said on first visit that it would have to be drain ( in hosp or with shunt) on last visit she seemed to do 180 now wants to do nothing. the nerologist said that it would have to be drain do to location is it common to have this back and forth. I worry that if they do nothing he could have worse problems. I live in Fl and would love to hear about some really good dr that know what they are doing down here. He has had many of the common symptoms. My worry is the he will start having the seiures that i know can cause long term nerologic problems and he trys to have such a normal life when he is symptom free and is very active. Any advice or suggestion in how to get him the best treatment would be appreciated.
March 3, 2010 - 9:58pmThis Comment
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