I'm not sure if this is the right place to ask this question...My 4 yo daughter has an arachnoid cyst in the cerebellopontine angle/posterior fossa area. Actually, it is a collection of multiple cysts; like someone blew bubbles in milk. It is displacing her brainstem and cerebellum. It wraps around her brainstem like a horseshoe pointed to the back of the head. It is wider on the right side. She had it fenestrated in August and we began to see immediate improvement with her balance, tremors, weakness, appetite and mood. However, in January I saw her hand tremor return and since then a progressive return of all symptoms, except now she has poor circulation to her feet causing them to be ice cold.
She will have an MRI on Thursday 4/1 and I am terrified to find out what I already know. It's the same size prior to the surgery or even bigger. Our doctor told us that shunting was not an option b/c of where the cyst is...Is this true? Is it possible to put a stent in to hold the area open? What are some of the other possibilities?
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I'm not sure if this is the right place to ask this question...My 4 yo daughter has an arachnoid cyst in the cerebellopontine angle/posterior fossa area. Actually, it is a collection of multiple cysts; like someone blew bubbles in milk. It is displacing her brainstem and cerebellum. It wraps around her brainstem like a horseshoe pointed to the back of the head. It is wider on the right side. She had it fenestrated in August and we began to see immediate improvement with her balance, tremors, weakness, appetite and mood. However, in January I saw her hand tremor return and since then a progressive return of all symptoms, except now she has poor circulation to her feet causing them to be ice cold.
She will have an MRI on Thursday 4/1 and I am terrified to find out what I already know. It's the same size prior to the surgery or even bigger. Our doctor told us that shunting was not an option b/c of where the cyst is...Is this true? Is it possible to put a stent in to hold the area open? What are some of the other possibilities?
March 30, 2010 - 12:28amThis Comment
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