I am so sorry to hear about your daughter. You must feel frustrated. I do not know much about stents to hold the cyst or area open, I am not familiar with that procedure, however, I am familiar with the fact that there are people or patients who have had to have their cyst fenestrated multiple times. This is because many cyst develop walls inside, that is what they do best. After the fenestration, the walls can re-form or re-grow. This can cause the cyst to start building up pressure again. If this is the case, they may opt to re-frenestrate the cyst. I was almost about to have mine re-fenestrated when they discovered that my cyst was still open and communicating with the rest of my cerebral spinal fluid, so they opted ofr a shunt. I would talk to her doctor to find out what all the possibilities are, and why they think she is showing old signs and symptoms. Ask them about the walls....did she have them prior to the first surgery and do they think they may have grown back if she did have them.
I hope everything goes smoothly for her and that you will keep us update.
Good luck and she will be in my thoughts...
Maria
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Hi,
I am so sorry to hear about your daughter. You must feel frustrated. I do not know much about stents to hold the cyst or area open, I am not familiar with that procedure, however, I am familiar with the fact that there are people or patients who have had to have their cyst fenestrated multiple times. This is because many cyst develop walls inside, that is what they do best. After the fenestration, the walls can re-form or re-grow. This can cause the cyst to start building up pressure again. If this is the case, they may opt to re-frenestrate the cyst. I was almost about to have mine re-fenestrated when they discovered that my cyst was still open and communicating with the rest of my cerebral spinal fluid, so they opted ofr a shunt. I would talk to her doctor to find out what all the possibilities are, and why they think she is showing old signs and symptoms. Ask them about the walls....did she have them prior to the first surgery and do they think they may have grown back if she did have them.
I hope everything goes smoothly for her and that you will keep us update.
March 30, 2010 - 4:16pmGood luck and she will be in my thoughts...
Maria
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