Hi Debbie - There appear to be some forums on the support website where you can ask questions and get information from the members. With 340 members there will hopefully be people that have knowledge of East Coast doctors and hospitals with the expertise you need. If that's not something you want to do then you could connect with Dia and ask her directly.
In terms of writing up your information and sending it to hospitals, I'm not sure that I understand what you are saying. Hospitals have strict protocols governing the way they handle patient information and they could not accept a request to review patient data that is sent to them out of the blue. Have you been in touch with Barrow and/or Duke to find out their protocols?
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Hi Debbie - There appear to be some forums on the support website where you can ask questions and get information from the members. With 340 members there will hopefully be people that have knowledge of East Coast doctors and hospitals with the expertise you need. If that's not something you want to do then you could connect with Dia and ask her directly.
In terms of writing up your information and sending it to hospitals, I'm not sure that I understand what you are saying. Hospitals have strict protocols governing the way they handle patient information and they could not accept a request to review patient data that is sent to them out of the blue. Have you been in touch with Barrow and/or Duke to find out their protocols?
Maria, can you help out here?
June 28, 2010 - 5:54pmThanks, Pat
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