Pat ElliottExpertHERWriterGuideBlogger(reply to Hamp)
Hamp - Thanks for sharing your story, and welcome to EmpowHER. We've heard from several women who've gone through exactly what you're describing - being told not to worry about their cyst because it's benign, and that the headaches they have are not related. Some of our members have gone on to have surgery which has brought relief from the headaches. What we have heard repeatedly is that it's really important to work with a neuro team that has experience with arachnoid cysts and takes your concerns seriously.
It would likely be helpful if you joined a support group and talked with others who have faced this. The Arachnoid Cyst Awareness Network has 372 members and can be found at this link: http://arachnoidcystnetwork.com/acanetwork/home.php
I also hope you hear from some of our members who have arachnoid cysts.
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Hamp - Thanks for sharing your story, and welcome to EmpowHER. We've heard from several women who've gone through exactly what you're describing - being told not to worry about their cyst because it's benign, and that the headaches they have are not related. Some of our members have gone on to have surgery which has brought relief from the headaches. What we have heard repeatedly is that it's really important to work with a neuro team that has experience with arachnoid cysts and takes your concerns seriously.
It would likely be helpful if you joined a support group and talked with others who have faced this. The Arachnoid Cyst Awareness Network has 372 members and can be found at this link: http://arachnoidcystnetwork.com/acanetwork/home.php
I also hope you hear from some of our members who have arachnoid cysts.
Take care,
July 26, 2010 - 6:22pmPat
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