I am the orginal poster regarding 12 y/o daughter with all the diagnoses and just found out she was born with this cyst.
My daughter goes to the neurologist tomorrow for an EEG and to see the doctor after the EEG. I'm going to request MRI and hope I don't have problems. My pediatrician refused to refer her for an MRI. I have family in the east coast and the west coast in California. I am going to search doctors in those areas for a neuro-surgeon. I heard of a good one at Chops in PA. That way I will not have hotel expensese and I will know she's in good hands.
My struggle is getting an MRI to send to a doctor.
The cyst has been discusssed to my daughter and in front of her. Now when my daughter doesn't do what I told her to do she starts crying and says, "I don't know what's wrong with me I just can't remember things or I didn't understand etc." She does have a history of not doing what I tell her to do and she has told me in the past she forgot or didn't understand or something to those effects.
Now it seems like she's repeating things I have talked about. I don't know if it's real or if she's using that as an excuse now? She also asks me why she's not "normal" and why she can't just be like the other kids. I told her that she is normal and then she said that if she's so normal then why has she gone to so many doctors and so many places her whole life and her sister hasn't.
I don't know what to say to her. If I try to explain it like one would be able to do with a "typical" 12 y/o she wouldn't understand and she'd get frustrated. I try to use simple terms but she still doesn't always understand.
She tests average on an IQ test....a 96. I know she's smart. It's just language processing problems. Launguage processing problems was confirmed by developmental pediatrician and speech pathologist. They believe this cyst could have a lot to do with her problems although it's not their speciality. They helped me get into this neurologist we are going to tomorrow. I called neurologist last week and we already have EEG and dr. visit tomorrow.
In fact dev. pediatrician and speech dr. are not writing their final reports until hearing back from neurologist. They don't want to diagnose her with anymore developmental delays, learning disorderss, or anything else until the neurological aspects are explored.
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I am the orginal poster regarding 12 y/o daughter with all the diagnoses and just found out she was born with this cyst.
My daughter goes to the neurologist tomorrow for an EEG and to see the doctor after the EEG. I'm going to request MRI and hope I don't have problems. My pediatrician refused to refer her for an MRI. I have family in the east coast and the west coast in California. I am going to search doctors in those areas for a neuro-surgeon. I heard of a good one at Chops in PA. That way I will not have hotel expensese and I will know she's in good hands.
My struggle is getting an MRI to send to a doctor.
The cyst has been discusssed to my daughter and in front of her. Now when my daughter doesn't do what I told her to do she starts crying and says, "I don't know what's wrong with me I just can't remember things or I didn't understand etc." She does have a history of not doing what I tell her to do and she has told me in the past she forgot or didn't understand or something to those effects.
Now it seems like she's repeating things I have talked about. I don't know if it's real or if she's using that as an excuse now? She also asks me why she's not "normal" and why she can't just be like the other kids. I told her that she is normal and then she said that if she's so normal then why has she gone to so many doctors and so many places her whole life and her sister hasn't.
I don't know what to say to her. If I try to explain it like one would be able to do with a "typical" 12 y/o she wouldn't understand and she'd get frustrated. I try to use simple terms but she still doesn't always understand.
She tests average on an IQ test....a 96. I know she's smart. It's just language processing problems. Launguage processing problems was confirmed by developmental pediatrician and speech pathologist. They believe this cyst could have a lot to do with her problems although it's not their speciality. They helped me get into this neurologist we are going to tomorrow. I called neurologist last week and we already have EEG and dr. visit tomorrow.
In fact dev. pediatrician and speech dr. are not writing their final reports until hearing back from neurologist. They don't want to diagnose her with anymore developmental delays, learning disorderss, or anything else until the neurological aspects are explored.
August 31, 2010 - 7:50amThis Comment
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