My daughter has a prosterrior fossa cyst and was diagnosed when i was pregnant with her,hospital decided to leave the cyst when she was born as it wanst causing any harm to her or symptoms,from 4 months old i noticed her head tilting to the right and there was a few times when she projectile vomited and her head looked a funny shape at the back,took her to local gp and explained about the cyst and i got told her syptoms were nothing to do with cyst and that she had torticolitis neck spasming with lying on one side too much,this wasnt the case i went away with docs info and took her word for it but my daughter got worse at 8months i took her to see her specialsit for routine check up explained her sypmtoms they took head circumfrence and it was off the chart for her age they organised a mri she had mri on the thur and fri morning i got the call saying they would need her in over the weekend to do surgery,cyst had grown so much the fluid took up all right hand side of her head and was pushing her brain down her spine,so i was right all along with my instincts bloody doctors lost all faith in them,she had it fenestrated at 8months and is now 2 but showing symptoms again shes sometimes off balence walking into items of furniture she was late walking 22 n half months,and still tippy toe walks sometimes,but its these episodes shes been having tht are just so out of character shes been doing them at night waking up screaming shouting for me but pushing me away hitting me in face kicking screaming no no no mammy i cant calm her down when shes like this have to lie her on floor and try hold her so she dosnt hurt herself thrashing around yet her recent mri in december showed no obvious size change in cyst and no preassure on brain,shes had eeg testing to see if its fits but that was last year and they all came bk fine so god only knows whats happening its so worrying and upsets me cause i know somethings not right
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My daughter has a prosterrior fossa cyst and was diagnosed when i was pregnant with her,hospital decided to leave the cyst when she was born as it wanst causing any harm to her or symptoms,from 4 months old i noticed her head tilting to the right and there was a few times when she projectile vomited and her head looked a funny shape at the back,took her to local gp and explained about the cyst and i got told her syptoms were nothing to do with cyst and that she had torticolitis neck spasming with lying on one side too much,this wasnt the case i went away with docs info and took her word for it but my daughter got worse at 8months i took her to see her specialsit for routine check up explained her sypmtoms they took head circumfrence and it was off the chart for her age they organised a mri she had mri on the thur and fri morning i got the call saying they would need her in over the weekend to do surgery,cyst had grown so much the fluid took up all right hand side of her head and was pushing her brain down her spine,so i was right all along with my instincts bloody doctors lost all faith in them,she had it fenestrated at 8months and is now 2 but showing symptoms again shes sometimes off balence walking into items of furniture she was late walking 22 n half months,and still tippy toe walks sometimes,but its these episodes shes been having tht are just so out of character shes been doing them at night waking up screaming shouting for me but pushing me away hitting me in face kicking screaming no no no mammy i cant calm her down when shes like this have to lie her on floor and try hold her so she dosnt hurt herself thrashing around yet her recent mri in december showed no obvious size change in cyst and no preassure on brain,shes had eeg testing to see if its fits but that was last year and they all came bk fine so god only knows whats happening its so worrying and upsets me cause i know somethings not right
February 13, 2011 - 3:25pmThis Comment
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