Hi. Thank you for the website. I found this website a while back by complete fluke, and that fluke helped me figure some things out that have plagued me for a lifetime, but progressing severely since 2005. I had a progressive heart problem, with several diagnosis MPV, COPD, Atrial Tachycardia, and meds were not helping so much, and I was just getting sicker, so I went about my own search of symptoms on the internet and from one site to another, I somehow ended up here. When I read about this, I remembered that in 2005 I had a CT scan due to migraines which I always had leaving me with some visual problems. I was told then by the doctor not to worry about it, because other than the cyst it referenced an abnormality that this doctor said was severe retardation and I wasn't so it couldn't be. I listened and didn't follow up and forgot about it. After finding this site I searched through my medical records and I found it. I have a posterior fossa subarachnoid cyst with noted cavum septum pellucidum or agenosis of the corpus callosum. Since 2005 I have been going to cardiologists and doctors for various problems and find now that these doctors were trying to diagnose what now appears to be symptoms, realized from this article and a few others, I am thinking this must be the cause. Especially since the heart problems started just a few months after the visual problems which the CT scan was done for.
Is anyone else here having heart problems from this? I learned from another site that this can sit on the nerves and cause neurally mediated hypotension and the description of those symptoms are almost exactly what I have been going through plus and minus a few symptoms described . Sometimes my blood pressure drops severely for no specific reason, and had all the while growing up but not near as severe, and without presenting with these symptoms, my description of the symptoms always made them test me for low blood sugar or diabetes. I also have erratic change in my pulse rate, pretty much stuck laying down, with an approximate 80 bpm, if I sit it goes higher, and if I stand now it goes as high as 165 bpm before my monitor errors out. This makes me feel weak, dizzy, nauseous, numb arm pains, chest pain.
Finding this site was like an answer to a lifetime of problems all came full circle so I really appreciate so much finding it and the people who put it up. I could list several symptoms but this is getting long so I'll refrain, but, would like to ask, if anyone knows a good neurologist who has experience with this in the Las Vegas area. I would really appreciate a referral. Just as the doctor who told me this was nothing, over the tons of research I have done on this, I am seeing this very same thing was told to so many people who suffering with this. After all this time, I would really like to see someone who actually has experience with this. Thanks.
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Hi. Thank you for the website. I found this website a while back by complete fluke, and that fluke helped me figure some things out that have plagued me for a lifetime, but progressing severely since 2005. I had a progressive heart problem, with several diagnosis MPV, COPD, Atrial Tachycardia, and meds were not helping so much, and I was just getting sicker, so I went about my own search of symptoms on the internet and from one site to another, I somehow ended up here. When I read about this, I remembered that in 2005 I had a CT scan due to migraines which I always had leaving me with some visual problems. I was told then by the doctor not to worry about it, because other than the cyst it referenced an abnormality that this doctor said was severe retardation and I wasn't so it couldn't be. I listened and didn't follow up and forgot about it. After finding this site I searched through my medical records and I found it. I have a posterior fossa subarachnoid cyst with noted cavum septum pellucidum or agenosis of the corpus callosum. Since 2005 I have been going to cardiologists and doctors for various problems and find now that these doctors were trying to diagnose what now appears to be symptoms, realized from this article and a few others, I am thinking this must be the cause. Especially since the heart problems started just a few months after the visual problems which the CT scan was done for.
Is anyone else here having heart problems from this? I learned from another site that this can sit on the nerves and cause neurally mediated hypotension and the description of those symptoms are almost exactly what I have been going through plus and minus a few symptoms described . Sometimes my blood pressure drops severely for no specific reason, and had all the while growing up but not near as severe, and without presenting with these symptoms, my description of the symptoms always made them test me for low blood sugar or diabetes. I also have erratic change in my pulse rate, pretty much stuck laying down, with an approximate 80 bpm, if I sit it goes higher, and if I stand now it goes as high as 165 bpm before my monitor errors out. This makes me feel weak, dizzy, nauseous, numb arm pains, chest pain.
Finding this site was like an answer to a lifetime of problems all came full circle so I really appreciate so much finding it and the people who put it up. I could list several symptoms but this is getting long so I'll refrain, but, would like to ask, if anyone knows a good neurologist who has experience with this in the Las Vegas area. I would really appreciate a referral. Just as the doctor who told me this was nothing, over the tons of research I have done on this, I am seeing this very same thing was told to so many people who suffering with this. After all this time, I would really like to see someone who actually has experience with this. Thanks.
March 10, 2011 - 11:18pmThis Comment
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