(I'm sorry, I know I just responded to the latter post with this same comment, I meant it to be a response to you.)
My daughter was diagnosed with a posterior fossa arachnoid cyst at age 4 months. It was causing hydrocephalus, which is how it was discovered. She was also originally diagnosed with Dandy Walker Syndrome, but after closer inspection by her neurosurgeon and the radiologist, it was determined to be just a large arachnoid cyst. It was compressing her brain stem and her cerebellum. We live in Rhode Island and she was treated at Hasbro Children's Hospital in Providence. Her neurosurgeon is Dr. Petra Kinge. She is the most amazing woman and we couldn't have asked for a better doctor. Everything for us moved very fast because the hydrocephalus needed to be treated. She had a craniotomy to fenestrate the cyst one week after it was discovered. The MRI the next day showed her brain stem and cerebellum to already be back to their normal shape. She is almost a year old now, and has been doing exceptionally well. She is almost walking, and is developing right on track. She will continue to have MRI's to make sure the cyst doesn't close up again, and is now also seeing a neurologist to monitor her development. Just wanted to share a story of hope.
Dr. Klinge isn't only a pediatric neurosurgeon, but her speciality is hydrocephalus.
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(I'm sorry, I know I just responded to the latter post with this same comment, I meant it to be a response to you.)
My daughter was diagnosed with a posterior fossa arachnoid cyst at age 4 months. It was causing hydrocephalus, which is how it was discovered. She was also originally diagnosed with Dandy Walker Syndrome, but after closer inspection by her neurosurgeon and the radiologist, it was determined to be just a large arachnoid cyst. It was compressing her brain stem and her cerebellum. We live in Rhode Island and she was treated at Hasbro Children's Hospital in Providence. Her neurosurgeon is Dr. Petra Kinge. She is the most amazing woman and we couldn't have asked for a better doctor. Everything for us moved very fast because the hydrocephalus needed to be treated. She had a craniotomy to fenestrate the cyst one week after it was discovered. The MRI the next day showed her brain stem and cerebellum to already be back to their normal shape. She is almost a year old now, and has been doing exceptionally well. She is almost walking, and is developing right on track. She will continue to have MRI's to make sure the cyst doesn't close up again, and is now also seeing a neurologist to monitor her development. Just wanted to share a story of hope.
April 15, 2011 - 9:34amDr. Klinge isn't only a pediatric neurosurgeon, but her speciality is hydrocephalus.
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