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Anonymous

Hi Diane,

If I might venture a guess as to why you have heard more about IBC lately, it's because we (the IBC community) have pushed very hard for education into the public arena and also the medical community. Sadly women are still being misdiagnosed more often than not, so we have a lot of work yet to do.

My daughter was diagnosed at 37 in 2003 and begged me to write about Inflammatory Breast Cancer. Which I have done. I also went to our local TV channel and KOMO's Michelle Esteban did a piece called 'The Silent Killer', which went national. ABC, CNN and MSNBC picked it up and this piece is still going around the internet in emails. Remembering this piece was done in 2006 and even today is helping women realize there is more than one kind of breast cancer, and this one is "rarely" picked up by mammograms.

I lost my daughter to this disease on August 29, 2007 but have continued with my promise. You can read what our foundation has and is doing by going to www.eraseibc.com.

Science has come a long way since 2003, thankfully and the first in the world IBC clinic was opened in October of 2006 in Houston Texas, at M.D. Anderson.

I hope this answers some of your questions.

Patti Bradfield, President
The Inflammatory Breast Cancer Foundation

June 11, 2009 - 11:38am

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