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(reply to Anonymous)

I have my doubts that the oil is the factor that made it possible for him to reach the age or 30. There are other patients (with the childhood phenotype of ALD) that have lived almost as long thanks to 24/7 high quality medical care.

The movies idealises the Lorenzo's Oil diet and 'its effectiveness. The Odone's did however revolutionize our understanding of the disease and how it works. And gave us the treatment that seems to actually work in some cases. Cases where it seems to work are children that don't have neurological symptoms before they are on the diet. There's still a lot of discussion in the medical community in how far it is effective. However, I wouldn't recommend taking children of the diet when they aren't suffering from possible side effects of the diet (in rare cases).

August 16, 2009 - 3:32am

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