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Hi Sue - Thank you for writing. It must be frustrating to have been trying to pinpoint your condition for such a long time through so many different specialists. We can't promise you a quick answer, but we will work with you to try to find some answers.

If you are in a position to go to an organization that focuses on unusual conditions and takes a wholistic approach to treating patients, that could be an option. The Mayo Clinic is one such provider, and many people go there who have not been able to get answers elsewhere.

Looking at your symptoms, I've found some conditions that may be relevant, and want to give you links so that you can dive deeper into the information to see if it's relecting what you're experiencing. If not, we will do some more research. Take care, and hang in there! Pat

Thoracic Outlet Syndrome:
https://www.empowher.com/media/reference/thoracic-outlet-syndrome

Complex Regional Pain Syndrome:
https://www.empowher.com/media/reference/complex-regional-pain-syndrome

Sjogren's Syndrome
https://www.empowher.com/media/reference/sjogrens-syndrome

February 18, 2010 - 6:52pm

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