so here is the update . becuase of the extream pain the newpain management doctor put me on fentanyl patches. not sure how i really feel about this. they do help with keepin the pain at the same lvelbut are hardly making it tolerable i havent had very many level 10 pains exept in the mornings and after a short nap. which sounds like it would be working. and is has allowed me to stay asleep a little longer. however it stll only keeps my pai n around a level 8. which isn't enough improvement to d muchmore tan what i was doing.......nohng!!!!! so i gave him a call to se if i could get n earlier appointment but i was no go. i dont understand what is going on. i also requested another new MRI afte the surgery. still waiting to here back on that. if you had told me my pain would have even had the slightest possability to get worse from the surgery i wouldn't have done it. even if something went wrong during the operation i dont know if i could go through with another surgery . i can not endure any more pain. i am going to see a new neurosurgeon at the end of the month along with the pain managemnt dr again and the orthopedic surgeon. i feel as though my life revolves around dr's. no let me change that. it DOES revolve around dr's . i also hae decided to see the university of indiana neurology department and rheumotology department . i am tired, so very tired of dr's not knowing what is going on. everyone seems to say that my pain can not be from degenerative disc and degenerative joints but it must because it's all they can find...what a contradiction. i also feel that most doc's wont truly look at my symptoms as part of something going wrong with the epidual. it is as if they don't know the rare complications that could have gone wrong. all i want is to be thoughly investigated. i want a new mri an new emg and nerve conduction. the one i had before has been critized by everyone for not being completed becuase it only had one leg done 4 times with the needle. the doctor that did this test also never tested my back. i have tried being very submissive with dr's letting them make their own conclusions as to what is going on. i have also voiced my concerns about specific problems such as arachnoiditis. they have seen me on bad days where i fail all the clinical test and been very emotional and crying in the office. they have also seen me on good days where i am strong and full of optimism. is there anyone who has a diagnosis of rare nature that took multiple doc's to figure out, also how long did it take. my worst fear is that one day after my statute of limitation runs out that will be the day that any doctor gives me a diagnosis that was caused by epidural. up till then i guess it is in the experts hands to inform me . thank you to all of those that read this blog and as always if you have a similar problem please, i urge you to respond. maybe we can unite and actually get somehting figured out...
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so here is the update . becuase of the extream pain the newpain management doctor put me on fentanyl patches. not sure how i really feel about this. they do help with keepin the pain at the same lvelbut are hardly making it tolerable i havent had very many level 10 pains exept in the mornings and after a short nap. which sounds like it would be working. and is has allowed me to stay asleep a little longer. however it stll only keeps my pai n around a level 8. which isn't enough improvement to d muchmore tan what i was doing.......nohng!!!!! so i gave him a call to se if i could get n earlier appointment but i was no go. i dont understand what is going on. i also requested another new MRI afte the surgery. still waiting to here back on that. if you had told me my pain would have even had the slightest possability to get worse from the surgery i wouldn't have done it. even if something went wrong during the operation i dont know if i could go through with another surgery . i can not endure any more pain. i am going to see a new neurosurgeon at the end of the month along with the pain managemnt dr again and the orthopedic surgeon. i feel as though my life revolves around dr's. no let me change that. it DOES revolve around dr's . i also hae decided to see the university of indiana neurology department and rheumotology department . i am tired, so very tired of dr's not knowing what is going on. everyone seems to say that my pain can not be from degenerative disc and degenerative joints but it must because it's all they can find...what a contradiction. i also feel that most doc's wont truly look at my symptoms as part of something going wrong with the epidual. it is as if they don't know the rare complications that could have gone wrong. all i want is to be thoughly investigated. i want a new mri an new emg and nerve conduction. the one i had before has been critized by everyone for not being completed becuase it only had one leg done 4 times with the needle. the doctor that did this test also never tested my back. i have tried being very submissive with dr's letting them make their own conclusions as to what is going on. i have also voiced my concerns about specific problems such as arachnoiditis. they have seen me on bad days where i fail all the clinical test and been very emotional and crying in the office. they have also seen me on good days where i am strong and full of optimism. is there anyone who has a diagnosis of rare nature that took multiple doc's to figure out, also how long did it take. my worst fear is that one day after my statute of limitation runs out that will be the day that any doctor gives me a diagnosis that was caused by epidural. up till then i guess it is in the experts hands to inform me . thank you to all of those that read this blog and as always if you have a similar problem please, i urge you to respond. maybe we can unite and actually get somehting figured out...
indiana mama
June 17, 2010 - 11:45amThis Comment
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