I would seek out neurosurgeons at Children's National Hospital's neurosurgery team or Boston's Children's Hospital where they have a team of seven pediatric neurosurgeons some of whom have expertise in arachnoid cysts. Also Boston has a thing called Grand Rounds where you can obtain an opinion and a plan for her care and it is done all online. You upload your scans that the hospital can provide you and all her records, then I am told that the entire team of neurosurgeons reviews your case at one time together. Once they recommend a care plan, you may have to travel to Boston for treatment. I think you go to where the best pediatrics nuerosurgeons practice even if it is inconvenient. My child has a large AC and we are doing this for our son.
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I would seek out neurosurgeons at Children's National Hospital's neurosurgery team or Boston's Children's Hospital where they have a team of seven pediatric neurosurgeons some of whom have expertise in arachnoid cysts. Also Boston has a thing called Grand Rounds where you can obtain an opinion and a plan for her care and it is done all online. You upload your scans that the hospital can provide you and all her records, then I am told that the entire team of neurosurgeons reviews your case at one time together. Once they recommend a care plan, you may have to travel to Boston for treatment. I think you go to where the best pediatrics nuerosurgeons practice even if it is inconvenient. My child has a large AC and we are doing this for our son.
Good luck.
February 19, 2016 - 8:31pmThis Comment
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